Jen's RA Story

I was diagnosed shortly after a liver transplant. The transplant limits the treatment options that I have. I am not allowed to take anti-inflammatories, supplements, or methotrexate. I have failed Humira, Orencia, Enbrel and am stuck on hydroxychloroquine (which isn't working). I had reactions to all steroids and Remicade.

I have tried to get a pain management referral and it was like I asked for illicit drugs. I am scheduled with my third rheumatologist in 7 years, but I don't see him until December. The other two left the area. I am changing hospitals this time. I am only allowed low dose acetaminophen for pain, but it doesn't work and it triggers a migraine when I take it. I am also dealing with chronic migraines at this time.