Long journey from the past and to the future

I recently joined the community but I have been trying to learn more and more of my wife’s condition as we move along in our lives.

It’s been rough for the past few years as things are piling on, often with no solution. Not sure if these things are tied together or not. About 2 years ago, my wife complained of chest pain and breathing so we went to the ER. She was told she had pneumonia. It was odd in a way because it kept coming back and none of the meds were working. Nodules were found and she had decreased lung capacity with fluid buildup. Even today she has another bout of pneumonia. This would be the 2nd or 3rd this year.

Around the same time (2 years ago) she had a back X-ray and was found to have degenerative disc disease. From her CBC’s throughout the last 5 years she has had a high WBC and high RDW-CV, with Vitamin D levels near 11-12, and a constant infection indicated on urinalysis panels and culture tests. I just wanted to see if there is anyone with some of the same experiences and also if blackout spells are common. They typically last her about 45 min and has slurred speech and confusion.

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Comments

View Comments (2)
  • Richard Faust moderator
    4 months ago

    Hi cjwadsworth18. So sorry to hear your wife is struggling. First, let me concur with c7mv96 that any new symptoms need to be brought to the attention of your wife’s doctor towards finding causes, whether RA or something else. Second, it is good to see your level of support. I am the husband of someone with severe RA (Kelly Mack, a contributor here). Your wife is not alone with recurring pneumonia issues. In fact, my wife wrote about her battles with it here: https://rheumatoidarthritis.net/living/surprise-pneumonia/. If you feel that your wife’s RA is not well controlled, don’t hesitate to bring these concerns to the doctor and remember that she is always entitled to a second opinion. Hoping you and your wife find some answers and please know that both of you are always welcome here for information and support. Best, Richard (RheumatoidArthritis.net Team)

  • Mary Sophia Hawks moderator
    4 months ago

    What a frustrating time you have had! Blackout spells are not common, especially with slurred speech and confusion afterwards. Her care should be coordinated through her primary care physician, but it sounds like the blackout spells warrant a neurology evaluation. If she has a rheumatologist, she definitely needs an appointment. The policy of this site is not to dispense medical advice. However, the nurse in me just wanted to make suggestions. Prayers for both of you.

    MS

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