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Make Time for Treatment

I was just barely 30 when I was first diagnosed. Of course, denial set in and delayed treatment for a time. Then I started plaquinel, but found the side effects outweighed the benefits. As a single mom of two, working full time plus OT was mandatory. Treatment could wait, or so I thought. As a registered nurse, I knew better, but continued to delay the expense and hassle of seeking treatment. Next month I will be 50. I started treatment a few years ago, but it was not soon enough to stop the damage to my joints. I will soon be forced to give up the career I truly love and I have days that I can not unbend my fingers. It is a good week if I have a couple days that I can overcome the fatigue long enough to play with the grandkids. I see many posts by newly diagnosed people. Please, Please do not delay treatment. Yes, it can be expensive. There are some programs available from the drug manufacturers to help with the expense. Do not let pride stop you from checking out these programs. The appointments for treatment can be a hassle too, but fingers that won’t unbend are more of a hassle. For those with a new diagnosis of RA, please Make Time for Treatment. I wish I had.

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Comments

  • Mariah Z. Leach moderator
    5 years ago

    Hi Mary ~ I am a mom of two with RA and I know from experience that it is no easy task! And you are right that seeking immediate treatment is so important for preventing long term joint destruction. Thank you for being brave enough to share your story so others can learn from your experiences.

  • Carla Kienast
    5 years ago

    Mary, thanks so much for sharing your story. Yes, the sooner treatment begins, the more damage can be prevented, as you so clearly describe. It hasn’t been that long that the medical community changed to recommending earlier and more aggressive treatment. Hopefully this will enable future patients to minimize pain and joint erosion.

  • Andrew Lumpe, PhD moderator
    5 years ago

    Such wisdom borne, unfortunately, out of your earlier choices. Thanks for sharing and I hope that newly diagnosed pay heed.

  • Kelly Mack moderator
    5 years ago

    Hi Mary, thanks for sharing your story. You’re right in that seeking treatment fast is crucial for preventing damage and mitigating the RA. Hang in there. Hope you find the community helpful for getting the support you need.

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