My journey and struggle with RA
Diagnosed in 2004, woke up one morning with what felt like a broken very swollen wrist. Since than my life has been nothing but complicated to say the least. I went through 7 years of intensive infertility treatments, 7 surgeries, and many, many and still looking unsuccessful medication combinations.
I am still looking for help. I've tried Methotrexate pills and injections, Humira, Enbrel, Cimzia, suffered these with terrible results, increased pain etc. I have been on the only (remotely successful) treatment Prednisone with Leflunomide (for the past 10 years). Prednisone dose has been as high as 80 mg (after the miracle birth of my son in 2006. This high dose (luckily only for 2 weeks) caused me to leave my very precious new born son in my car (had no clue he was with me, just forgot). I was arrested, and suffered so much anxiety, embarrassment and heartbreak. I was arrested (of course), but I really had no clue just what an effect this medication was having on me.
My doctor immediately reduced my dose but I will carry the heartache of what happened in my heart forever. Needless to say, my goal is to be off the Prednisone completely but nothing else works for my disease. I am down to taking 8 mg. of Prednisone along with 20 mg of Leflunomide and every 4 weeks an infusion of Gammaguard. Just recently (my doctor still trying to remove the Prednisone dose) gave me Sulfzidyme (Sulfa drug) which resulted in an increase/flare of all my RA symptoms. So, now I can't take that.
I was just wondering if there is anyone else out there like me...What are others with RA taking and what is working?
I have 2 small boys (age 8 and 5) and really need something that works. I've had a cast on my foot now (on and off) for the past 2 years as my bones break easily due to the steriods. My entire family (brother, sister, nieces, and nephews) have totally disconnected from me and my husband. (Not 100% sure why exactly) but part of it I know is due to the personality changes I have gone through due to the side effects of the steriods. Sadly, I can not get anyone of them to tell me what I did or why as none of them will speak to me or acknowledge my letters so I've just basically given up. Heartbreaking because I need them so much. I know that my brother says I cause too much "drama".
I am 48 years old and have a walker, scooter, no job, and just want my life back. Anyone?????? offer some success stories???? tips????
How often you do experience an unexpected boost of energy?