Pain Is So Hard To Live With

I have submitted other stories on here a few months ago. I was diagnosed with JRA when I was 2 years old and now I am 26 years old. My life has been pretty hard having pain. When I was a child it was really hard for me to fit in. After I became an adult life became a little easier. I need a double knee replacement and I need to lose 50lbs before I do and it’s getting a little easier everyday. I am losing weight and becoming more active. At the end of the day I am very tired and my body is in a lot of pain.
I finally found my wonderful fiancé who does most things around the house for me. It’s so hard for me to do the normal house chores. I think other people take advantage of how easily they can get up and clean the house do dishes and laundry all in the same day with no problem but for someone with RA getting one or two of those things done in one day can be difficult. So having my fiancé helping me I am not as tired or in as much pain at the end of the day. I also do nice things for myself like dying my hair or getting my nails done or putting some comfy clothes on that also look nice. What I am trying to say is that doing something nice for yourself might make you feel a little better. If anyone just needs someone to talk to I am on here all the time and I receive emails every time I receive a comment below.

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Comments

View Comments (4)
  • kikikk
    2 years ago

    Thanks for this article. I have had rheumatoid arthritis for 20 years and agree that pain is so hard to live with. When diagnosed, I was working full time, my husband was working full time and we had three school age children. It was virtually impossible to keep up with household chores. If not for my husband doing a lot of the housework it would simply not have been done. Now, our children are grown and I am not working because of complications from the RA. Even though I am not working, if I’m in a flare, the housework still doesn’t get done. We have recently made the decision to hire a housekeeper to come twice a month. I can’t tell you how nice it is to actually have the vacuuming and the dusting all done at the same time! I feel guilty hiring someone to help but I just have not been able to keep up.

  • Tiptoetammy17 author
    2 years ago

    Kiki I do not think that you should feel guilty. Most people can do their chores without thinking about it. For someone like us its hard to do the simple things. People do not know how good they do have it, just to be able to do things independently. Thanks for your comment kiki

  • Richard Faust moderator
    2 years ago

    Thanks for writing tammyrstevens17. My wife, Kelly Mack (a contributor here), was also diagnosed at 2 years old. She had bilateral knee and hip replacements as a teenager. Here is an article she wrote about those surgeries and the fact that she would do it again: https://rheumatoidarthritis.net/living/call-me-the-bionic-woman/.

    A few years ago she had to have a revision done on one of the knees (it had been almost 20 years). Here is an article she wrote in the early days following that surgery: https://rheumatoidarthritis.net/living/a-brand-new-knee/.

    I hope these articles help a little with the knowledge that the surgeries will be worth it. Having your fiance there should certainly help. Here is a video Kelly and I made with her interviewing me on being married to someone with RA: https://rheumatoidarthritis.net/video/what-its-like-being-married-to-someone-with-ra/.

    Keep us posted on your progress. Wishing you the best.

    Richard (RheumatoidArthritis.net Team)

  • Kelly Dabel moderator
    2 years ago

    Hello again tammyrstevens17, thank you so much for posting! We appreciate hearing an update of how you are doing. So glad your fiance is helpful and supportive of you, that’s really wonderful. I know others in our community will be encouraged by your story and your very kind offer to support and talk with others here who may need a friend.

    We appreciate you being part of our community. Best of luck to you as you prepare for your double knee replacements. In addition to speaking with your doctor, these articles on preparing for surgery may be helpful to you if you haven’t seen them already: https://rheumatoidarthritis.net/surgery/tips-on-preparing-for-ra-surgery/ and https://rheumatoidarthritis.net/surgery/questions-to-ask-your-doctor-before-surgery/

    Please continue to keep us updated on how you’re doing and of course, please reach out with any questions. Kelly Dabel, RD – Rheumatoidarthritis.net Team

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