My story of pain, fatigue and more

I was 36 when I started having flare ups, which I was missed diagnosed for at least 6 months for both shoulders. Couldn’t pick up anything and my husband had to help bathe me and help go to bathroom. And my baby boy was just few months old. But anyway the pain was worse then giving birth. Next it was both wrists and hands I nearly passed out cause of the pain, I had huge knots that swelled up I remember wanting to die. Didn’t know what was wrong I was still trying to work when I could. Then both feet and ankles flared couldn’t walk at all for 3 or 4 days, then both knees, then both hips, and my neck. I literally went through 7 months of. Hell until I could get insurance. They did a blood test that’s when they found out it was RA, but flare ups got worse, but RA doctors are very busy so it took 3 or more months to see him. My dad had RA everywhere. He was bed ridden before he passed away. I made it 3 years working, but missed a lot of days, I had and still have severe fatigue, and people don’t understand, so one day I went to work, I was already hurting so bad I didn’t even make it 2 hours, I left that day and I couldn’t take it any more so came home took all the medicine I had left, my husband found me and got me to hospital in time. Went to hospital now I’ve also been diagnosed with bipolar, ptsd, anxiety disorder, and can’t leave. Home unless going to dr. All this has turned my world upside down, I struggle every day, but I’m still breathing and my baby is 5 now, but I feel so bad cause I don’t have energy for anything I still hurt like hell. That my story.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The RheumatoidArthritis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

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  • Katie926
    2 years ago

    We are Silent Warriors…no one truly knows what we go through internally. It takes a physical toll but most of all, a mental toll. Never give up. When you need strength, look into those beautiful eyes of your baby. Fight for them and be the best you can be despite your limitations. God Bless.

  • Richard Faust moderator
    2 years ago

    So sorry to hear that you are having these difficulties Chash.76. I am glad you are reaching out to tell your story. The emotional aspects of receiving a diagnosis and handling the effects of the condition are often overlooked and misunderstood. This article from our editorial team looks at managing these aspects of RA: https://rheumatoidarthritis.net/living-with-ra/managing-emotional-problems-and-stress/.

    You speak of difficulties getting to see a rheumatologist. Finding a doctor that is a good fit can be difficult. This article from one of our contributors gives some tips for choosing a doctor: https://rheumatoidarthritis.net/living/choosing-doctor-2/.

    Finally, fatigue is a symptom that comes up often within the RA community. This article from our editorial team looks at fatigue and offers some tips: https://rheumatoidarthritis.net/symptoms/fatigue-and-weakness/.

    I know that I have given you a lot of information here (trust me, the articles are short), but remember that information is power. Know that you are not alone. The members of the community will do their best to offer support and answer questions you may have. Wishing you the best and keep us posted on how you are doing. Richard (RheumatoidArthritis.net Team)

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