Delays

By casmere

1 min read

Hi, so I had been waiting for my rheumatologist appointment on September 17th because I was to get the go ahead to start Simponi. Well, the day before my virtual appointment I get a call from the rheumys receptionist that my appointment has been cancelled and information sent to my family Doctor and to contact him. I had no info or idea why this would've happened and when I spoke with family Dr. he had not received any info regarding me. My name on something and the information was for another patient. We were both confused about this.

Trying to get answers & continuing to wait

On September 22nd I wrote an email to my rheumatologist and the RN I see. It was more like a letter with a number of paragraphs to it. With questions, why's, and updates on a hives break out I had in August.

Last Friday October 2nd I received a reply from the receptionist that she has forwarded my message to Ocean my RN. It took 10 days.

My appointment is finally scheduled

Yesterday Monday October 5th I received a call from Ocean my RN and she patched in my Rheumatologist. Well, he profusely apologized to me numerous times, there was a mix up, and they would set up a virtual appointment this week. He also said they would contact the company to get my Simponi ordered again as they had cancelled it, and somehow to get me to have an injection of it this week.

My virtual appointment is tomorrow morning and I will find out when I start Simponi.

Hope that the new medication helps

It has been a crazy mixed up few weeks. I sure hope Simponi helps me. I am hurting bad, in a flare of pain, fatigue and malaise and fog.

Blessings,
Casmere

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Daniel Malito Moderator & Contributor
<inline-mention user-id="3145733" username="casmere"/> The waiting these days for doctors has been bad, it's at a glacial pace now (when it wasn't very fast to begin with). I hope you get the relief you are looking for from the visit and best of luck with Simponi! Keep on keepin' on, DPM
1. casmere Member
 Thank you Daniel, I sure hope I do also. Should be atarting Simponi next week. I will post an update when I do. Blessings Casmere
L rick Phillips Moderator & Contributor
Casmere, I hope it is helpful as well. That is pretty wild that you were refereed back to a family doctor. In a similar situation my father told a specialist his family doctor told him to get him in right now or he woudl report the specialist to the AMA. It turned out he was seen fairly quickly. When I heard this I asked dad, but who is your doctor? You are, he said. You are my families doctor, no one said you were not that kind of doctor. Best part? I dont charge anything. 😀 Rick - moderator
1. casmere Member
 Thank you Rick for commenting on my story and the hope for good results. I hope this as well Blessings Casmere
Richard Faust Community Admin
Hi Casmere. Glad that it appears you have the situation resolved and will be starting your treatment. Mistakes do happen and many doctor's offices were not quite prepared for the new virtual situation that COVID-19 thrust upon them. That said, please know that it is perfectly acceptable for you ask about reassurances that this won't happen again and for a description of the procedures being implemented to ensure it. Wishing you the best and please feel free to keep us posted on how things are going. Richard (RheumatoidArthritis.net Team)
1. casmere Member
 Thank you Richard for the advise on asking for reassurances so it doesn't happen again. Also, thank you for the best wishes, and I will do an update when I get my first injection. I believe it should be this week. Waiting on delivery of med. Blessings Casmere