What's going on

By gurrola

1 min read

In 2010 I notice these aches and my joints were so bad I couldn't walk I called to my son to help me out of bed. I went to the ER and they said they couldn't help me,so I fought it. Then that same year I had the flu for 9 months. I just thought I was overworking. Then on June 25, 2010 I had a stroke! I went to emergency. With a stroke I also had a collapsed lung! From my severe cough they did all these test on me and they found out I have lupus, RA, fibromyalgia and osteoporosis. Now I have some else called Costochondritis associated with RA and that is painful I hate all this I'm always tired, and sleepy and in pain.

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SusanHU Community Admin
Hi gurrola, Thank you for taking the time to share your story and we're very sorry to hear about all of the difficulties you have had. We've heard from other community members that they have struggled to get a diagnosis and also with comorbidities so please know that you are not alone and that we are here to offer you support - or just to listen when you need it! It sounds like you're dealing with a lot of unique symptoms and factors so I wanted to share a few articles with you that might help you or at least show that others understand you! <a href='https://rheumatoidarthritis.net/living/ra-symptoms-unusual-frustrating' target='_blank'>https://rheumatoidarthritis.net/living/ra-symptoms-unusual-frustrating/</a> <a href='https://rheumatoidarthritis.net/living/what-does-pain-actually-look-like' target='_blank'>https://rheumatoidarthritis.net/living/what-does-pain-actually-look-like/</a> <a href='https://rheumatoidarthritis.net/living/i-am-so-tired-of-fatigue' target='_blank'>https://rheumatoidarthritis.net/living/i-am-so-tired-of-fatigue/</a> I hope you find these helpful - and am glad you've joined our community. Please keep us posted on your progress! - Susan (RheumatoidArthritis.net Team Member)
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You didn't mention it but presumably you'll be seeing a rheumatologist soon. That would be the first step towards meaningful treatment. You'll never be perfect again, like everyone else on this site, but you can certainly get a lot better. Good luck.
thegallopinggrandma Member
Hi Gurrola, I would go back to the ER you first went to and tell them what is actually wrong with you. That is terrible just to send you home when you could have been getting early treatment. Make sure you get a good Rheumatologist, it is the key to good treatment and as soon as possible. I also had costochondritis which was only found after they had taken my gall bladder out due to mis-diagnosis ! You can read all about it on my Blog and hope you improve soon !
karenanne Member
Sorry to hear about all your problems. When I have a flare-up, it feels like the flu. At first that's what I thought I had until it kept coming and going very quickly. This was the beginning to my RA/fibro diagnosis. Thank God my doctors were on top of it. Best of luck.