hi all im Sam and im 27. I was diagnosed with RA 6 years ago after 15 months of them trying to work out what it was and then fibro around 2 years ago and last month I was diagnosed with a Transitional spine. At the time I was diagnosed with RA i had 3 kids, I now have 5 who are 9, 8, 7, 3 and 3 months. From the start with the diagnosis I was never given much support, mainly just meds that haven’t really worked. During my 4th preg my arthritis advanced a lot and its not been under control since then, my last preg was a big surprise. The only thing I keep being told is I need to learn my limits and try to take it easy.
Does anyone else struggle with doing that? I feel that I cant talk to the nurses I see fortnightly. I go in and have my blood taken but haven’t built up a relationship with them and my consultant has told me numerous times that its all just guess work really. I have a few friends with RA who are sympathetic but those that don’t know seem to think that I shud just sit and rest and its that easy when anyone with these conditions knows that its not that simple.
People who don’t know seem to think im superwoman with 5 kids and are surprised when they hear iv got these conditions as the general consensus seems to be that when u have them ur either ready for ur pension or crippled. I have my good days and my bad days but some days I just feel completely alone with this, my natural instinct is to push my limits to their extremes but now im being told iv got to learn where my limits are, I wish it was as easy as its made out to be . . .