I was recently diagnosed with RA. I had been feeling generally unwell, my hand was swollen slightly and I have had osteoarthritis in my hip and this was really playing up. I also had anaemia (down to 2 and should be between 10-20) while my ESR was 86.
in just under 2.5 weeks I upped the iron intake (not with pills but with food and a natural iron supplements. I then had another blood test. The results showed my ESR rate is falling and has dropped by 30+ while my liver indicated signs of inflammation and this is also dropping. Personally, I have radically altered my diet and have massively increased the amount of omega 3. I think this has really helped.
However, none of this is relevant to my rheumatologist and he has stated that I must take methotrexate and plaquanil and at very high doses and forever. Even if there was a remission, I am informed I must continue to take the methotrexate at 20mg and the hydroxychloriquine at 400mg. Forever. I am not impressed. While I am constantly reminded of my vulnerability and that I must take all these toxic drugs forever, it seems that every discussion I try to have is simply dismissed. I can’t get access to my full blood results and my x-rays are going to be discussed with me in 5 ( yes, in 5 ) months.
In between times, I am expected to take these rather high doses. What does anyone think??????