Video: Caregiving

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   mlynn Member

   <p><br/>Nicely done Kelly and Richard-a great Q and A! It&#39;s true that RA is a voracious beast and will claim time and attention. I&#39;m glad that you addressed that here in terms of not letting RA be, you know, the thing taking up space all of the time.<br/>My husband, my biggest supporter, lost his temper once and said, &quot;All we ever talk about is your disease.&quot; I am glad he said that, although it stung at the time. <br/>His comment prompted me to seek support for RA on sites like this. It&#39;s important for my mental health and marriage to be here so that I can be the woman that he married rather than a chronic patient that he shares the house with.<br/></p>

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      Richard Faust Community Admin

      <p>Hi <inline-mention username="mlynn" user-id="8572343"/>. Thank you so much for the kind comments. You are so right about that need to have those sources of support in the RA community. The reality is that no matter how supportive we want to be, the support us spouses offer is not the same as being able to communicate with people with similar experiences. Kelly as a group of other &quot;JRA kids&quot; who are all wonderful people who she can talk and share with. Often they will talk about just life, but there is that sort of underpinning of knowing how RA impacts different things. It really can help build that &quot;normal&quot; home life. Wishing both you and your husband the best. Richard (Team Member)</p>

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