Hi, I am a French 19 year old woman and I have been diagnosed with rheumatoid arthritis at age 7.
To tell you a bit about my story, it took me a year after my diagnosis before finding an amazing treatment that worked perfectly (roactemra). For about 6 years I lived a normal life thanks to this treatment, I could run, jump, do literally everything I wanted.
At age 14 my doctors told me my disease was on rest and it would be good to stop the treatment and see how it goes. A year later it all came back again. I got back to my treatment, but this time it didn't work as well. For 5 years now I have been unable to run, jump, stand or walk for a long time etc...
This year, the pains got worse, I did many exams and they all came back normal, my doctors are saying I "do not suffer from RA anymore" and they can't find any reason why I am constantly in pain.
For a few weeks now I decided to challenge myself and start running again (obviously progressively, since I haven't run for the past 6 years). But it went badly, to the point where my pains are unbearable and I can no longer walk without being in extreme pain.
I do not know how to get through all this, how to deal with the pain, and how to accept living a life where I am unable to do as I please.
If any of you have any tips to help me or if you want to share your story as well, feel free. I am with you in this <3