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Is Talking About Having RA with Others Difficult?

David wrote about why it's challenging for him and many others with RA to talk it (https://rheumatoidarthritis.net/?p=39646).

Is it hard for you to talk about having RA with others? If so, why?

  1. I have a difficult time discussing it with healthy people because I'm afraid that 1) they will judge me and find me wanting, deciding that I'm a whiner, or 2) decide I can't function with the other people I work with and push me out of my job, or out of activities I enjoy.


    I was diagnosed about five years ago with aggressive RA. My doctors and I had a long road to getting it sort of under control. I continued to have pain, so I decided to keep it to myself in my work and social lives, and soldiered on. I switched rheumatologists (I found one an hour away versus 3 hours away), and my life changed. This rheumatologist told me I had fibromyalgia, and along with my PCP, put me on Cymbalta. I LOVE what Cymbalta has done for me. I've also found, with much less pain, it's easier to discuss my RA, in a limited way. I no longer fear losing my job, or being forced to quit doing the things I love.


    We all know the control of RA is a moving target, so what the future holds is anyone's guess. It makes it easier to take it on when you can discuss your RA with others in your circle. It's too bad it is so difficult to do!


    Michele

    1. Thank you so much for sharing your story! So encouraging to hear that you found a rheumatologist who is helping you find relief. I hope that our community feels like a safe place to share and be reminded that you are not alone here. Wishing you continued relief ahead. Best, Kelly rheumatoidarthritis.net team member

  2. I have a hard time talking to others about my RA because I don't want them to think that I am a whiner and that I am only interested in my illness. Unless it's really obvious (like I have to use a cane or something) I try not to bring it up. I don't even like to talk about it with my parents or sisters. But my husband is my sounding board and I appreciate him listening.

    1. appreciate you sharing. Glad to hear that you have such a wonderful support in your husband. Wishing you relief ahead. Best, Kelly rheumatoidarthritis.net team member

    2. I can completely understand this feeling. It sounds like your husband is doing a great job and you also have this community cheering you on and here to listen. (well to read.) Jacqueline (team member)

  3. You know you eventually get old enough to no longer care what others think. I wish I had gotten there earlier. 😀 .............. rick

    1. How old is old enough?! I’m 77. My difficulty is my wife is the person I talk to most and I’m aware of putting too much load on her. She has to care for her mother too and has chronic physical illness herself and is therefore often often tired. During Covid lockdown especially I haven’t met family or friends. Having ME/CFS and Fibro it’s hard working out which is which and there are so many online communities it’s hard to know where to share each bit! Eg. brain fog happens across all. Oh and I didn’t mention osteo! Am I sounding enough of a boring whinger?!

      1. You are old enough when it no longer matters to you if people think you are a boring whinger. 😀

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