Hi all. I was diagnosed with inflammatory arthritis (thought to most likely be RA, though it could be psoriatic arthritis) back in the fall, after five years of joint pain and fatigue that kept getting written off as solely fibromyalgia. I struggle with doubts about my diagnosis, because I don't have typical swelling or redness, and I'm seronegative. X-rays and ultrasounds of my hands and ankle also did not show anything. What did come back as abnormal was my Vectra test, which showed moderate disease activity. I've read again and again that the Vectra test isn't supposed to be used as a diagnostic tool, but my doctor seemed to find this result very significant in diagnosing me, along with possible family history.
Since my diagnosis, I've been on sulfasalazine. After a month or so on this I did start to feel like I have significantly more energy and less pain, and I have been able to be more active. I'm still limited in what I can do because of the fatigue and pain, but the people around me have noticed a huge difference in my activity and general demeanor. But I worry all the time that because I don't have a lot of the classic symptoms I don't really have inflammatory arthritis and I was misdiagnosed, and this is all some kind of placebo effect. I do have anxiety, so that complicates things.
I guess what I'm wondering is if anyone has had similar experiences or doubts. Or even if anyone else was diagnosed partially using Vectra test results. My doctor is supposed to be one of the best so I am trying to trust her, and she does seem to know her stuff, but I just worry and I wish things were more clearcut. Thanks for any thoughts or insight you have to offer.