Flare due to missing infusion
Had to miss my infusion three weeks ago due to a uti, this seems to be happening frequently I end up in flare my hands won’t work swell, joints hurt if I was self injecting I don’t have to check for uti I dunno how much longer I can hold on it’s crippling me. Hard to find light at the end of the tunnel at the moment
It's a slippery slope when taking meds that lower the immune system, because it can lead to increased likelihood of getting an infection. In general UTIs I know when I have had them are not pleasant to live with. They can be very uncomfortable and painful too. Then add in having to miss the infusion.
There was a period of time I was getting frequent UTIs also. Experience seems to be the similar with how my body reacted to the infection and lack of the RA meds. I don't get them as frequently now, even though I continue to take the RA meds. For me I started taking a really good pharmaceutical strength probiotic.
Also, I am really glad that you reached out. These are not easy things to walk through. Having walked through something similar I can tell you, you will get through this. Stay in touch with your doctors regarding your symptoms. If you haven't had the discussion with your doctor, ask if there are some ways they recommend for you to help your body to prevent the frequency of your UTIs. Like I mentioned probiotics, increased water intake, and some dietary changes have helped me tremendously.
Sending a gentle virtual hug your way. Please do not hesitate to reach out and know that your feelings matter and I appreciate you sharing and for being part of our community. Just Keep Swimming...Lynn Marie, "RheuamtoidArthritis.net Team Member"I have had the same experience. I get UTI fairly often. In fact, I take one antibiotic daily to help lessen the frequency of UTI. I had to miss my last infusion by one week. My hands hurt something fierce! My hips, knees and shoulders hurt too. This is the second time my infusion was delayed by UTI. Maybe, I should go back to oral medication.
oh that sounds so frustrating! Did you happen to see Lynn Marie's comment above? I ask because she shared some of her experience (and ideas) that you might be interested in also. And definitely don't hesitate to have a conversation with your doctor if you're regularly having to miss your infusion. You deserve to be getting some relief! Sending you gentle hugs. -- Warmly, Christine (Team Member) Hi
and . On top of the other great information in this thread, I want to share with you this Forum on dealing with UTIs: https://rheumatoidarthritis.net/forums/uti-biologics. I also want to note that prolonged use of oral corticosteroids has been found to increase the frequency of UTIs. Your doctor should be able to provide additional information. Avoiding/reducing UTIs would seem to be the optimal goal. Hopefully others will chime in with their experiences and, hopefully, what has helped them. Best, Richard (RheumatoidArthritis.net Team)
