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If Someone Told Me __ About My RA, I Would Not Have Believed It.

RHall

We posed this question to our community earlier this year. Some responses were:
*"The amount of medication and how often I would go to a doctor appointment."
*How bad finding a good doctor is."
*"How tired I would get just taking a shower."

What else would you add?

CommunityMember014720 Member
How quick you get used to a life of living in chronic pain
1. David Advent Moderator & Contributor
  So true. I hear you. And also how much effort it takes to get to that point of getting used to chronic pain!
  
  -David (RheumatoidArthritis.net Contributor/Moderator)
2. Richard Faust Community Admin
  Hi . Clearly all too true. My wife, Kelly Mack (a contributor here), was diagnosed at two, almost 45 years ago. She has noted how she simply doesn't know anything different and I suspect it doesn't take long with RA for a new normal to take over. Last year we were meeting with a surgeon before Kelly had a reverse shoulder replacement and the surgeon (who, on top of being a great doctor, had been through surgery himself and really got it) was commenting on the difference for an RA patient like Kelly when it came to pain. As he put it, what he or I would consider a bad pain day for Kelly is just Tuesday (or any other day). Know that people here get it. Best, Richard (RheumatoidArthritis.net Team)
KateOne Member
… how difficult it can be to find a compassionate, competent rheumatologist in your area…
1. Erin Rush Community Admin
  , one would think this wouldn't be a hard task, but I have read too many comments in this community that have led me to believe otherwise. I'm not sure why a person would choose to become a doctor if they are not compassionate. And one would hope EVERY doctor they see would at the very least, be competant!
  
  Best, Erin, RheumatoidArthritis.net Team member.
2. Lynn Marie Witt, MSOT Moderator & Contributor
  right....I was diagnosed in my twenties (2004). I am on rheumatologist number 8. Honestly, this one is a keeper. Have you found that right compassionate, competent rheumatologist for you?
  Appreciate you reaching out. Just Keep Swimming...Lynn Marie, "RheumatoidArthritis.net Team Member"
Dian123 Member
That my life was changed forever, and not in a good way.
1. Erin Rush Community Admin
  , I'm sorry. RA definitely is an unwelcome surprise for pretty much every member of this community. Please know you're not alone here!
  
  Best, Erin, RheumatoidArthritis.net Team Member.
2. Lynn Marie Witt, MSOT Moderator & Contributor
  I understand what you are saying. I attached a link below, to an article I wrote about my journey with RA. https://rheumatoidarthritis.net/living/lifestyle-adjustments
  Thanks for reaching out!
  Just Keep Swimming...Lynn Marie, "RheumatoidArthritis.net Team Member"
Daniel Malito Moderator & Contributor
All the other things RA causes besides joint pain!! Keep on keepin' on, DPM