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Infusion advice

Since none of the other medications seem to be controlling my seronegative RA, it has been decided that we will try infusions next. Can anyone give me tips, tricks, or advice on what to expect, what to bring, what I will feel like afterward, etc? How long does it take? Anything you can share with me would be greatly appreciated!
Thank you!

  1. Hi, ! I'm sorry other medications haven't worked for you thus far. I hope infusions are a good fit for you. I thought you might appreciate this piece on what to expect at that first infusion appointment -- It gives you a good rundown of what infusion appointments are like. And here's another piece that shares some great tips for doing infusions -- I do hope our community members chime in here as well and share their experiences with infusions. As far as the length of each infusion appointment; that can vary based on a number of factors. Some take an hour and some take up to 4-5 hours. Many members recommend being hydrated for your appointments, among other things. Also, bring along something to do, whether it's a book to read, games to play on your phone, etc. Some people find infusion centers on the chilly side, so dressing in layers may help, too. But, again, it varies from person to person and clinic to clinic.

    I hope some of this information is helpful for you and please don't hesitate to reach out if you have any more questions about infusions or anything else RA-related! We're happy to help in any way we can.

    Best, Erin, Team Member.

    1. I have a 1/2hr infusion of Simponi Aria every 8 weeks. The appointment time is actually about 1 - 1-1/2 hrs because of updating records, checking vitals (before and after) setting up IV and waiting for time to monitor for possible after effects. The difference is, I get this done at home! I’m comfortably in my bed with my books, blankets and snacks if needed! Insurance companies are on board as it saves them some money and the infusion center saves on overhead!

      1. I tried a few medications that didn’t work for me before we decided to try infusion. It has made ALL the difference. I am in the dr office about one hour. 30 min for set up and verifying all info etc. and 30 for the actual infusion. They keep close watch on kidneys, liver, heart etc with blood tests. I have never had any kind of reaction from any of this and felt fine afterwards. I highly recommend infusion if it will help you.
        I do have severe neuropathy and have great pain 24/day from that. But the RA pain has been taken care of with the infusion.
        I pray it will do you as much good as it has me.

        1. sbab,
          I just had my first infusion in February. It's almost like a spa experience. I arrived coffee and water in hand to find out they had both. They also gave me an extra blanket and snacks.
          Some things you might want to bring:
          a jacket or shawl
          your beverage of choice
          a book or game
          a positive attitude.
          Then just sit back, relax, and enjoy the excuse to put your feet up.

          I was switched to infusion from injection because it allowed for an increased dose of my medicine. I am seeing gradual improvement while anxiously awaiting my next infusion.

          Mary Sophia

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