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Interstitial Cystitis

Anyone else been diagnosed with Interstitial Cystitis?

  1. I suffer from UTÓ

    1. what treatment have you had or are having?

  2. Thanks for reaching out. I hope others in our community chime in with their experiences to share with you. In addition to speaking with your doctor, this article may be helpful to you: https://rheumatoidarthritis.net/living/multiple-autoimmune-diseases. Best, Kelly, Rheumatoidarthritis.net Team Member

    1. , I was diagnosed with IC before RA. I was on Elmiron for a while. I doubt if they even prescribe it anymore, I just control it with diet now. I was miserable at first but very rarely have a flare now. Good luck!

      1. , I am so sorry. 🙏🏻

      2. Hi . You mentioned that you were diagnosed with the interstitial cystitis first. I found this study in which IC was found to be associated with the development of autoimmune diseases, including RA: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8488113/. In addition, the International Painful Bladder Foundation lists RA (and other autoimmune conditions) as an associated condition (see: https://www.painful-bladder.org/pbs-ic_ass_dis_introduction.html). Glad you have managed to get your under control. Best, Richard (RheumatoidArthritis.net Team)

    2. @zero mine was diagnosed around 5 years ago, after suffering constant problems for years. Sadly nothing has helped and I now face bladder removal as my bladder has been completely destroyed.

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