Looking to learn how people navigated their care options
Hello, I'm finding myself overwhelmed determining what the best care options might be. I'll hear different things from different doctors, and there are many websites out there with lists, and then I see other options on clinicaltrials.gov. I started building a website to help with care navigation, and would love to hear your thoughts and feedback, and how it might be made more useful for you. If you're interested please reply below or send me a DM!
sorry you're feeling overwhelmed with all of the different treatment options. The short answer is that the best care isn't a one-size-fits-all answer. RA impacts everyone differently, as do the meds. So a med or treatment that works for one might not work for another. That is why it is very important to work with your doctor to create a tailored treatment plan based on your personal medical history. If you're looking to see people's different experiences you can use the search bar at the top left of the screen. Also here is our treatment page which outlines potential care options: https://rheumatoidarthritis.net/treatment - Reggie (RheumatoidArthritis.net Team Member) Thanks so much Reggie, I appreciate it! Have you found your doctor has provided a comprehensive set of options or you had to do some of the heavy lifting yourself? Did you consider clinical trials?
You're welcome! I think one of the trickiest and frustrating parts with RA is how it's so unique to the individual. It would be so much easier if there was a more certainty around how treatments would work for people! - Reggie(RheumatoidArthritis.net Team Member)
I have finally found a GP who works with my RA team and who supports my ideas on meditative care. 5 months ago I started treatment with Renvoq since then I have been able to cut back on methotrexate (I was maxed out ) and have been on the max amount for 10years. Methotrexate brain fog is very real and I am so hopeful I can get off it. My fatigue is less and no steroids for 1 yr. I hope you find the answer for you. Don't give up. Thanks for sharing - it's so good to hear the progress you've experienced! Less fatigue and more energy is such an amazing positive benefit. 😀 - Reggie (RheumatoidArthritis.net Team Member)
Thanks for sharing Sherrill! I love that you managed to find a way to find a way to help mitigate the side effects. How many minutes/day are you meditating and has it helped with the brain fog as well?
