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Misdiagnosed with RA

After being treated for over 20 years for RA, I found out several months ago that I probably never had it in the first place. Multiple doctors over the years kept me on medications and intravenous drugs claiming that it was necessary.
While teaching English in Vietnam last year, I visited a Rheumatologist there who told me that there was something strange about my bloodwork and that she did not believe that I actually have RA. When I returned to the U.S., I went to the VA clinic, and the Vietnamese rheumatologist's suspicion was confirmed: I do not have RA and probably never did have it. The symptoms that I had been experiencing were from my hypothyroidism condition, not RA, so, I never needed the RA meds.
I had always been a bit suspicious of the diagnosis, as I was not inhibited in my workouts or other activities, but my doctors attributed this to the efficacy of the drugs (some of which, according to them, would take years off my lifespan). So, either my earlier doctors did not know what they were doing, or, dare I say it, they knew that I did not have the condition, but kept me in the dark so that they could continue to make money off me by prescribing expensive treatments that my insurance paid for. Having sought out multiple opinions before starting the treatments years ago, which my insurance required me to do, all of which said that I DID have RA, I followed the doctors' advice and started the treatments which ran me through a gamut of oral and intravenous treatments. The doctors said that I needed it; my insurance covered it, so, I followed their direction.
I am now completely off the RA meds and I feel fine.
I was wondering if anyone else has had this experience.

  1. Hi, !

    I have to admit that your situation has me stumped. While a number of our members have been misdiagnosed in the past, it's usually the case that they were diagnosed with another issue before being properly diagnosed with RA. So, again, your situation is not one I have come across here before. That said, I bet you are not the only individual to be misdiagnosed with RA.

    Out of curiosity, have the doctors given you any kind of a diagnosis in lieu of RA? Or any kind of an explanation as to what may have led those previous doctors to think you had RA?

    But, I am so glad you are off all those meds and that you are doing well! That is awesome! Though, I know thinking back on the years spent on medications with some serious side effects would make anyone mad, or, at the very least, seeking an explanation.

    Best, Erin, Team Member.

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