Hi all. Help!!!
I’m in constant pain. Hands, joints of fingers and thumbs (both sides) wrists (both), elbows (both), feet. My RF at the last count was 149, the time before it was 98 which was about 18 months ago. X-rays came back negative a couple of weeks ago and I’ve just heard my anti-ccp antibodies are negative.
I cry every day with pain. I sat on the stairs this morning and sobbed. I’m taking paracetamol, ibuprofen and dihydrocodeine prescribed by my GP and I carry a hot water bottle around with me just for some relief.
So what now. My GP mentioned a referral to a rheumatologist but sent me for anti-CCP’s first because he said rheumatology is difficult to get into at the moment.
I have a feeling I’m going to be left hanging with no diagnosis and no idea where to go next.
Anyone else been in my situation?
Thank you x