HELP!What I do know is this: I’m leaving California.
What I DON’T know is where I’m headed. I’m looking to live affordably, where I can get excellent medical care for all my AI diseases (Lupus, SLE, Fibromyalgia, Stage 3 CKD and a mystery gastrointestinal issue), and in a warm climate.
I was diagnosed 40 years ago with RA and 13 years ago, they added SLE Lupus and Fibromyalgia. I’m now 56 and my tank is empty. Nothing’s left.
With few exceptions, I have spent the past 7 years in bed. I’ve had 11 different hospitalizations since last May, averaging a week each stay. Call it intuition, call it instinct or call it a premonition but I know that if I stay here, I will be gone in 5-10 years. I’m not living. I am existing and waiting to die. If this is what the rest of my life looks like, I don’t want it. With help from my 27 year old son (who will be moving with me), I might be able to manage one move in hopes of finding a fantastic, aggressive Rheumy (and team) in an affordable, warm climate. This is it. I’m all in.........
Input and honesty much appreciated 💜💜