Finding My New Rheumatologist, Part 1My rheumatologist told me that he is retiring in May. Gulp. I have been with him a long time, and I have always treasured his advice and skill in treatment...Reactions0reactionsComments6 comments
My RA Care Team Includes My TherapistWhen most rheumatoid arthritis (RA) patients think about their disease management care team, I imagine they first think about their rheumatologist, followed maybe by a physical therapist, perhaps a chiropractor...Reactions0reactionsComments5 comments
Happy for Hand TherapyWhen I was growing up with juvenile rheumatoid arthritis (now juvenile idiopathic arthritis or JIA), my favorite therapy was hand therapy. There are a lot of reasons. I enjoyed doing...Reactions0reactionsComments11 comments
Seeking a New RA-Friendly HouseI’ve moved a lot in my life - mostly by choice, and often because I was convinced I would feel better somewhere warmer, dryer, or just different. It helped that...Reactions0reactionsComments18 comments
Dating: When to Tell or Not to Tell?Disclosing to someone new in your life, whether that's a romantic partner, friend, employer, coworker, or anybody else, can be complicated and difficult. It's especially challenging and anxiety-inducing when it...Reactions0reactionsComments9 comments
Missing the Big Picture!Do you ever feel like the dots are not connecting, the pieces are not lining up, or you are missing something? Odds are, you are focusing on the little stuff...Reactions0reactionsComments8 comments
What to Do with Health Anxiety when You Have RA?It’s a well-known established fact — okay, maybe not "established" per se, but it’s at least pervasive — that having a chronic illness like rheumatoid arthritis (RA) induces a certain...Reactions0reactionsComments8 comments
My First FallSince my rheumatoid arthritis diagnosis and, shortly after, my osteoporosis diagnosis, I knew I had a) a high fall risk and b) a higher chance of complications if I fell...Reactions0reactionsComments38 comments
Financial Planning Considerations for Living with Rheumatoid ArthritisHaving a chronic condition is expensive. At age 2 when I was diagnosed with juvenile rheumatoid arthritis, I had no idea what I was in for with either the disease...Reactions0reactionsComments7 comments
I Am FineI am fine - not great, not terrible; just "fine". I used to be good - great, even. But then, the rheum-dragon hit me and 'good' and 'great' turned into...Reactions0reactionsComments19 comments
Jealousy: A ConfessionI confess - sometimes I am jealous of other people’s good health. I want those arms that have shoulders that can swing like windmills or reach objects more than 6...Reactions0reactionsComments8 comments
RA - Same Disease, New SymptomsI’ve lived with joint pain for as long as I can remember, but I wasn’t diagnosed with rheumatoid arthritis (RA) until 2016, at the age of 30. I have written...Reactions0reactionsComments21 comments
New RA Accessibility Tool for the Cold, Winter MonthsI recently found a new tool/product that has really transformed how I handle the cold winter months. Although I’m in Florida, the temperatures can get down in the lower 40s...Reactions0reactionsComments2 comments
Dealing with Loss, Failure, and RADisappointment. Loss. Failure. These are things that everyone has to deal with, but those who live with chronic illness and especially rheumatoid arthritis (RA) have a special relationship with those...Reactions0reactionsComments6 comments
DisabledI recently decided to take the plunge and start attempting to file for disability. I live in America so I know, going in, that this is likely to be quite...Reactions0reactionsComments9 comments
Comorbidity Overload With RAI actually had no idea what the word comorbidity meant until I was a few years into my rheumatoid arthritis (RA) journey. As I recall, it came up when I...Reactions0reactionsComments6 comments
When the Brain Fog Rolls InIt’s not something I like to talk about but, like many people with rheumatoid arthritis, I get brain fog. These are days when I feel like my thinking is impaired...Reactions0reactionsComments32 comments
Feeling Like You're All Alone in the WorldSometimes, and particularly lately, I've been feeling lonely. And while this might seem hyperbolic — I know I'm not lonely because there are, in fact, people who live below me...Reactions0reactionsComments8 comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition like rheumatoid arthritis requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while...Reactions0reactionsComments0 comments
Should I Have to Be This Strong?I don’t know where it comes from, but there is a saying, "We’re only given in life what we can handle." I actually don’t believe this. In fact, I think...Reactions0reactionsComments4 comments