RA or Not RA?One of my favorite summer shows is about a concierge doctor in the Hamptons, New York. In one episode, a patient spends his entire adult life with a MS diagnosis;...Reactions0reactionsComments94 comments
Summer SwellingIt's July, and July in Minnesota (usually) means hot, muggy, humid, tropical, oppressive, and miserable weather. The miserable part is my own opinion, of course; some crazy people love living...Reactions0reactionsComments37 comments
Pain Is What the Patient Says It Is The title of this article is my favorite definition of pain. Pain is an unpleasant experience that is subjective in nature, with a physiological component; this definition may be more...Reactions0reactionsComments8 comments
Take a Pill, Gain a PoundThere is a lot of discussion of obesity and rheumatoid arthritis (including many great articles on this site). But I am given to wonder, which came first – the RA...Reactions0reactionsComments15 comments
The PTSD of RASo, I’m just making my bed, a small chore I do every single morning without much thought. Neatening my bedroom for the coming day lightens my mood and puts a...Reactions0reactionsComments17 comments
Support in Unlikely PlacesA very interesting thing happened to me a few weeks ago: I attended my 10-year high school reunion. First of all, I am not old enough for this reunion. Second...Reactions0reactionsComments4 comments
Does it Hurt? And Other Questions that are Really Hard to Answer I recently was talking to a good friend of mine who lives with ulcerative colitis, and the conversation turned toward how hard answers can be to seemingly innocuous and easy...Reactions0reactionsComments5 comments
Making Travel ChoicesMy husband and I really enjoy travel. We visit family, friends, and take trips to different places to see the sights, enjoy the food, and discover new experiences. I’ve felt...Reactions0reactionsComments2 comments
Hair (Not the Musical)I was recently at a meeting that included a number of other RA patient advocates. Over lunch, conversation turned (not unexpectedly) to various treatments and side effects. One of the...Reactions0reactionsComments8 comments
Pain and Sleep - a Two-Way StreetBelow is a screenshot from my phone. It shows a recent night of sleep tracking from my Fitbit. The red parts are when I was awake. It’s pretty easy to...Reactions0reactionsComments9 comments
Time for a ChangeWe have all heard about how certain events or changes in our lives can produce stress. Marriage, divorce, the death of a loved one, a new job, moving to a...Reactions0reactionsComments4 comments
Acceptance May Mean Saying "No"It was a dream job. One of those once-in-a-lifetime opportunities to do meaningful work you enjoy with people you respect at a generous salary. Those jobs are rare to begin...Reactions0reactionsComments5 comments
Just Add Exercise?I recently found myself suddenly in the middle of a heated debate about opioids and pain treatment via an E-mail thread, surprisingly made up of other patients and patient advocates...Reactions0reactionsComments10 comments
Why Do I Keep Doing That??When was the last time you pushed yourself too far and suffered the consequences of extra pain, stiffness and disability? My arms and legs screamed in pain. I felt the...Reactions0reactionsComments32 comments
Three Things I've Learned About Living Well With RAMarc Ian Barasch is someone I discovered about ten years ago when I came across his books, The Healing Path, A Soul Approach to illness, and Remarkable Recovery, which he...Reactions0reactionsComments2 comments
Fighting with the MirrorSometimes I get angry with the mirror. I feel it doesn’t reflect how I am feeling—specifically, how I am feeling on a bad RA day. There’s the saying: “It is...Reactions0reactionsComments10 comments
Caged to the Pain: A Story About My RibsThe ribs are an important part of our bodies. They protect our lungs and hearts and other organs like the spleen. They help us breathe by aiding the lungs and...Reactions0reactionsComments24 comments
The Frustrations of Driving with RABetween driving to doctor’s appointments, picking up prescriptions, and getting to therapy, you have plenty of places to go, in addition to work/school, family responsibilities, and/or social activities, driving is...Reactions0reactionsComments12 comments
Lessons from My FatherLately, I’ve been thinking about how what I have learned from my father has helped me to live with rheumatoid arthritis. Actually, it’s not just really about the RA, but...Reactions0reactionsComments9 comments
What is WeaknessIs weakness a state of mind? A feeling? Is it physical or mental? Can I control it? The definition of "weakness" is lacking in strength, feeble or slight defect so...Reactions0reactionsComments3 comments