Making Travel ChoicesMy husband and I really enjoy travel. We visit family, friends, and take trips to different places to see the sights, enjoy the food, and discover new experiences. I’ve felt...reactions2comments
Hair (Not the Musical)I was recently at a meeting that included a number of other RA patient advocates. Over lunch, conversation turned (not unexpectedly) to various treatments and side effects. One of the...reactions8comments
Pain and Sleep - a Two-Way StreetBelow is a screenshot from my phone. It shows a recent night of sleep tracking from my Fitbit. The red parts are when I was awake. It’s pretty easy to...reactions11comments
Time for a ChangeWe have all heard about how certain events or changes in our lives can produce stress. Marriage, divorce, the death of a loved one, a new job, moving to a...reactions4comments
Acceptance May Mean Saying "No"It was a dream job. One of those once-in-a-lifetime opportunities to do meaningful work you enjoy with people you respect at a generous salary. Those jobs are rare to begin...reactions5comments
Just Add Exercise?I recently found myself suddenly in the middle of a heated debate about opioids and pain treatment via an E-mail thread, surprisingly made up of other patients and patient advocates...reactions10comments
Why Do I Keep Doing That??When was the last time you pushed yourself too far and suffered the consequences of extra pain, stiffness and disability? My arms and legs screamed in pain. I felt the...reactions32comments
Three Things I've Learned About Living Well With RAMarc Ian Barasch is someone I discovered about ten years ago when I came across his books, The Healing Path, A Soul Approach to illness, and Remarkable Recovery, which he...reactions2comments
Fighting with the MirrorSometimes I get angry with the mirror. I feel it doesn’t reflect how I am feeling—specifically, how I am feeling on a bad RA day. There’s the saying: “It is...reactions10comments
Caged to the Pain: A Story About My RibsThe ribs are an important part of our bodies. They protect our lungs and hearts and other organs like the spleen. They help us breathe by aiding the lungs and...reactions24comments
The Frustrations of Driving with RABetween driving to doctor’s appointments, picking up prescriptions, and getting to therapy, you have plenty of places to go, in addition to work/school, family responsibilities, and/or social activities, driving is...reactions12comments
Lessons from My FatherLately, I’ve been thinking about how what I have learned from my father has helped me to live with rheumatoid arthritis. Actually, it’s not just really about the RA, but...reactions9comments
What is WeaknessIs weakness a state of mind? A feeling? Is it physical or mental? Can I control it? The definition of "weakness" is lacking in strength, feeble or slight defect so...reactions3comments
A New MedicationLast December, I made the switch from taking methotrexate and a biologic injection to a new medication: Xeljanz. Methotrexate had worked well for me for many years. When paired with...reactions4comments
The Reality of CareUntil the recent passing of our beloved dog, Leah, I had not really considered the parallels between her situation and mine, in terms of the intensity of care required for...reactions6comments
Don't Look BackAs I have moved through the years of my life I found myself, at times, looking back. I like to think this is a good way to take lessons learned...reactions14comments
The Importance of Wearing SunscreenI grew up a tomboy. I never cared too much for makeup. I only wore sunscreen during the summer or long periods outside. I had oily skin and some blemishes...reactions7comments
Being the Right PatientThe doctor who just performed my reverse shoulder replacement is new to me. He is in the same practice as the excellent surgeon that did my other shoulder replacement and...reactions6comments
How I Manage My Never Ending FatigueRaise your hand if you’ve ever brought up fatigue with your physician? Raise both hands if there was not a lot they could do to help you? Yup, me too...reactions37comments
Resilience and RA: A Call To ActionResilience is the ultimate life skill. We are all innately resilient; life on earth wouldn't prosper without it. Take a walk outside and you will see resilience everywhere you turn...reactions10comments