Amplifying Black Advocate Voices: How Bias Has Affected My Patient JourneyBeing diagnosed with an autoimmune condition like rheumatoid arthritis (RA) can take years. Many people report their early symptoms were dismissed by doctors or they were misdiagnosed. This delays treatment...Reactions0reactionsComments0 comments
New Insurance, New Troubles?I recently got a full-time job as an Assistant Director with an office of research down in Florida. This was such a great opportunity, and I’m incredibly excited to begin...Reactions0reactionsComments2 comments
Tech Assistance at SchoolIn my last article, I described some of the helpful physical accommodations I use at school. In this article, I will detail the technological assistance accommodations I use for class!...Reactions0reactionsComments2 comments
Now's the Time to Make a Better Bed for Pain Relief - MattressesSleep should be a time for the body to heal. Yet, poor sleep is linked to greater pain sensitivity. Unfortunately, people living with rheumatoid arthritis face this theft of sleep...Reactions0reactionsComments9 comments
The Long and Winding Road of RAIt never ceases to amaze me, even after nearly 25 years since my diagnosis of rheumatoid arthritis, how circuitous the RA journey remains. Just when I think I have a...Reactions0reactionsComments12 comments
More Than Just a Little Brain FogI’ve written about my experiences with brain fog multiple times. You know, the fuzzy feeling, the memory loss, and the brain fatigue? Brain fog is that annoying third wheel companion...Reactions0reactionsComments22 comments
My Tool Kit: Over-the-Counter Support for Managing My RAJoint pain, swelling, redness, and stiffness have plagued me for a long time. From high SED rates to waking up during the night screaming in pain as a child, I’ve...Reactions0reactionsComments47 comments
What To Expect When Expecting RA, Part 2Well, it's here: part 2 of the hotly (yeah, right) anticipated guide to what to expect when you are expecting RA. In part 1, we covered some of the mental...Reactions0reactionsComments3 comments
Looking for the Silver Linings in a New WorldAdaptability as an idea is very interesting to me. It constantly amazes me how easily animals adapt to new surroundings (as soon as two days, really). People always say that...Reactions0reactionsComments2 comments
Cascading ConsequencesIt seems like with my rheumatoid arthritis that one little thing going wrong can cause a cascade of negative consequences. It’s like setting up a trail of dominoes: knock one...Reactions0reactionsComments10 comments
An Open Letter to My Rheumatoid ArthritisRheumatoid Arthritis C/O Rick Phillips 1 T-Cell Boulevard My Body, Indiana Hello RA. How are things going? I hope you are having a lovely time. I mean, someone should be. I...Reactions0reactionsComments0 comments
Rheumatoid Arthritis and Pulmonary Arterial HypertensionRheumatoid arthritis (RA) is a systemic disease that affects more than joints within the body. It can affect connective tissue and internal organs, such as the heart, lungs, liver, or...Reactions0reactionsComments6 comments
Thoughts For People Newly Diagnosed With Rheumatoid Arthritis: Part 1If you were recently diagnosed with rheumatoid arthritis, I wouldn’t be surprised if you were scared, mad, frustrated, anxious, and overwhelmed - sometimes all in the space of ten minutes...Reactions0reactionsComments3 comments
Practical Ideas to Manage RA and Depression in a Post-COVID19 WorldIn a post-COVID19 world, it is easier than ever to find yourself sinking into the abyss of depression. Loneliness and isolation are at an all-time high while many of our...Reactions0reactionsComments2 comments
The Connection Between MGUS, Lupus, and Rheumatoid ArthritisLiving with lupus or rheumatoid arthritis calls for constant learning. There is much to know about these complex illnesses, varying treatment options, and ways to improve quality of life. People...Reactions0reactionsComments0 comments
Planning For Your Next In-Person VisitWhile some appointments can be done virtually using telemedicine, there are still many visits that need to be done in person. If you need to attend an in-person visit, planning...Reactions0reactionsComments0 comments
Take the Allergies In America Survey! (CLOSED)The Allergies In America survey is now closed! More than 50 million Americans are living with allergies. Allergens can take shape in many forms with widespread and serious effects on...Reactions0reactionsComments1 comments
Weight Fluctuations When You Have Rheumatoid ArthritisPerhaps one of the most frustrating things about having rheumatoid arthritis is the cyclical relationship between RA and weight. I’m not sure what other advocates and community members have experienced...Reactions0reactionsComments3 comments
Only In My DreamsI never remember a time when walking was easy. Yes, I remember when it was easier, but never easy. Being diagnosed with juvenile rheumatoid arthritis at age two, I also...Reactions0reactionsComments5 comments
Choose Your SymptomOr, pick your poison. Rheumatoid arthritis is a fun disease. It wreaks havoc on every part of our bodies. It provides a full access pass to the carnival of inflammation...Reactions0reactionsComments17 comments