Tips for Juvenile Idiopathic Rheumatoid ArthritisSince I was diagnosed at age two more than 40 years ago, the condition has changed names (from juvenile rheumatoid arthritis to juvenile idiopathic arthritis), the treatments have greatly improved...reactions8comments
My Healthcare Team: More Than Just RheumatologyWhen you have a chronic illness — and more specifically, a rheumatic illness — your rheumatologist is your eventual first point of contact after working with your primary care doctor...reactions6comments
Should I Have Some Physical Therapy for RA?I have been fortunate to have had some really talented and outstanding physical and occupational therapists to work with over the years I have had rheumatoid arthritis (RA), so I...reactions6comments
The American College of Rheumatology COVID-19 Vaccine RecommendationsRecently the American College of Rheumatology (ACR) released its recommendations for autoimmune patients (including rheumatoid arthritis) for the COVID-19 vaccines. Their conclusion was that although there is limited data, autoimmune...reactions5comments
Thoughts For People Newly Diagnosed With Rheumatoid Arthritis: Part 2In my last article, I talked about developing a support system and finding ways to boost your self-confidence. Today, I have two more suggestions for you. Just like any relationship...reactions1comment
New Xeljanz Safety Study Reports Drug Fails Two GoalsPfizer reported results from a new post-launch study on the safety of the drug Xeljanz (tofacitinib), finding more major adverse cardiovascular events and cases of cancer when compared to TNF-inhibitors...reactions4comments
Finding a New Routine with In-Person Care and TelemedicineAs technology has become a bigger part of our daily lives, its uses in healthcare have also grown. Thanks to improvements in technology, there are many options for accessing healthcare...reactionscomments
Preparing For & Attending An Infusion AppointmentAs an autoimmune disease patient living with Crohn's disease and rheumatoid arthritis, I have a long standing relationship with infusions. From inpatient hospitalizations to doctors' offices, infusion centers to home...reactions23comments
A Slide Lock Bag Sealing System Could Make A Big DifferenceMy hands hurt. One thing that RA/RD has impacted is my hands. My fingers regularly swell and small object manipulation is nearly impossible. I practice doing these manipulations by building...reactions11comments
Amplifying Black Advocate Voices: How Bias Has Affected My Patient JourneyBeing diagnosed with an autoimmune condition like rheumatoid arthritis (RA) can take years. Many people report their early symptoms were dismissed by doctors or they were misdiagnosed. This delays treatment...reactionscomments
New Insurance, New Troubles?I recently got a full-time job as an Assistant Director with an office of research down in Florida. This was such a great opportunity, and I’m incredibly excited to begin...reactions2comments
Tech Assistance at SchoolIn my last article, I described some of the helpful physical accommodations I use at school. In this article, I will detail the technological assistance accommodations I use for class!...reactions2comments
Now's the Time to Make a Better Bed for Pain Relief - MattressesSleep should be a time for the body to heal. Yet, poor sleep is linked to greater pain sensitivity. Unfortunately, people living with rheumatoid arthritis face this theft of sleep...reactions9comments
The Long and Winding Road of RAIt never ceases to amaze me, even after nearly 25 years since my diagnosis of rheumatoid arthritis, how circuitous the RA journey remains. Just when I think I have a...reactions12comments
More Than Just a Little Brain FogI’ve written about my experiences with brain fog multiple times. You know, the fuzzy feeling, the memory loss, and the brain fatigue? Brain fog is that annoying third wheel companion...reactions22comments
My Tool Kit: Over-the-Counter Support for Managing My RAJoint pain, swelling, redness, and stiffness have plagued me for a long time. From high SED rates to waking up during the night screaming in pain as a child, I’ve...reactions47comments
What To Expect When Expecting RA, Part 2Well, it's here: part 2 of the hotly (yeah, right) anticipated guide to what to expect when you are expecting RA. In part 1, we covered some of the mental...reactions3comments
Looking for the Silver Linings in a New WorldAdaptability as an idea is very interesting to me. It constantly amazes me how easily animals adapt to new surroundings (as soon as two days, really). People always say that...reactions2comments
Cascading ConsequencesIt seems like with my rheumatoid arthritis that one little thing going wrong can cause a cascade of negative consequences. It’s like setting up a trail of dominoes: knock one...reactions10comments
An Open Letter to My Rheumatoid ArthritisRheumatoid Arthritis C/O Rick Phillips 1 T-Cell Boulevard My Body, Indiana Hello RA. How are things going? I hope you are having a lovely time. I mean, someone should be. I...reactionscomments