A Short Update

By casmere

1 min read

Hi all, so if you read my previous update, you know of my "Hypogammaglobulinemia" diagnosis from my rheumatologist, back in January.

He has decided to start me on gamma globulin infusions. I am to be trained to do this/these infusions at home.

What does my infusion management look like for RA?

When I read about the infusion process, then received 3 good-sized boxes of supplies, I was very overwhelmed with this process.

I then had a call from an RN at the blood bank from the large hospital near me, to arrange for me to pick up the medicine. She helped me defuse some of my anxiety.

Then I had a call from the home visiting RN who is coming to train me and give me the first infusion process.

I can have her here up to 5 times if needed. She was able to help me also.

Informing family about my care

Now, on March 13th, I will have my first training and infusion with the RN. I am somewhat anxious as my daughters seemed to not want to know about this, so I haven't told them about these infusions.

I know I will have to let my daughter, with whom I live, know about it. And if she is home I will let the RN give her information on this.

That's my short, not so short, news about me and my venting.

Blessings and Prays,

Casmere

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The RheumatoidArthritis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Franki King Moderator & Contributor
Hi <inline-mention username="casmere" user-id="3145733"/>, Just wanted to wish you all the best with those infusions! Definitely a daunting task to learn but I am sure you will master it in no time. I remember how intimidated I was when I had to inject myself for the first time. 10 years later and it's as second nature to me as tying my shoes. Although it still freaks my friends and family out when they see me do it for the first time which is understandable. I hope your daughter comes around. Wishing you all the best, Franki
casmere Member
 Thank you, Franki King, for the kind words. I know it will come, although my hand strength isn't the best to push the fluid syringe to fill the infusion tubes. The nurse had to do it this week, and my daughter arrived home about this time, and she said to her about helping me with that part, as needed, would be great. She was here for the rest of the infusion. I had done self injector pens and also had to fill my syringe with the methotrexate myself for those injections, as my insurance wouldn't pay fir the pre-filled pens. I had no problem doing those injections, so I know this will become easier. Thank you for your encouragement Bkessing and prayers 🙏 Casmere 
1. christine.laaksonen Community Admin
 <inline-mention username="casmere" user-id="3145733"/> I'm so glad the nurse and your daughter you available to help and support you. It sounds like you will be a pro at this in no time! But please know that we're always here for you. Thanks for keeping us updated on how you're doing and managing. -- Warmly, Christine (Team Member)
casmere Member
Thank you christine.laaksonen 
1. casmere Member
 sorry post went vefore readt lol For the confidence in me, and your encouragement.