First time to this forum… Looking for some support. Recently my RA has gotten a lot worse in my hands, mainly my dominant right one. I was diagnosed in 2016, but during what has felt like the longest year of my life I still have no set plan in place for treatment due to a very poor reaction to MTX (seizure). Currently i’m on painkillers alone; Paracetamol, Naproxen and a whopping 120mg of Oxycodone a day! Although this takes the edge off the pain, it still causes loads of difficulty doing the simplest tasks. Recently i’ve started noticing a significant loss of flexibility and strength in my hand. In all honesty this terrifies me… I keep thinking to myself “i’m 27… how could this be happening already? If it’s this bad now, what will it be like in ten years time?”
I feel like to most people I sound as if i’m moaning about nothing… Like they think “it’s only sore joints, how bad could it be?” Over the past couple of months i’ve noticed the psychological toll this disease is having. Where I used to be confident and full of energy I now feel physically and mentally weak.
I was due to have an appointment with my Rheumatologist last month, but it was cancelled by them and i’ve yet to have a new appointment arranged. I have seen my GP but they were unhelpful and couldn’t do anything but increase my pain medication. Would anyone here recommend going to see a private consultant for advice? I realize this would be fairly costly, but if it was worth my while I would very seriously consider it.
Any advice you guys could give me would be amazing.
Thank you in advance!