I was diagnosed with juvenile RA when I was 9 years old, since then pain and inflammation have been a part of my life. I was diagnosed with RA as an adult and 30 + years later I am still dealing with the consequences of this disease. I have been able to fight through the pain and fatigue and not allow it to have control over me but lately that has not been possible. I have side effects of long term medicine use and now additional diseases associated with having an autoimmune disease because God forbid you can just have one. I’m having a flare up and not getting any relief which is causing some of my other health issues to flare up. I not only hear you have to get up and exercise and not give into it by my family but by my many specialist. I get up and go to work everyday but it sometimes takes all my energy and once I’ve gotten showered and changed I’m so exhausted I want to climb back into bed but if I want to keep my job I have to show up and preform which makes going home to exercise impossible since I’m in so much pain and so much fatigue I could fall on my face. Which you would think would make falling asleep so easy but of course sleep will usually allude me since that is when most of my joints will decide to flare up with no relief from heat, ice, pillows. So now I’m feeling like I’m getting depressed on top of everything else, which is why I looked up this forum. I’m tired of feeling like I’m alone and no one understands what I’m going through. When I was a child my mother told me to suck it up and I’ve been doing that for the last 30+ years and I just don’t have the energy or strength to do it anymore.
Thank you for listening.