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SeroNegative RA concern

  • By whatnots2

    Hi. I’m 52 and with a SeroNeg RA factor. Here’s my issue. I’m now disabled and do suffer everything I read. My concern is what exactly SeroNeg MEANS to me. When I say it, it makes me feel as though I don’t really have RA. Do I? I don’t get it. I have all symptoms. I understand it’s just a factor in RA, but I don’t understand if I’m supposed to be “not as bad”, even “not at all”. I’m pretty much surrendered to pain and all that goes with RA, and am legally disabled? Since my Rheumatologist can’t explain it, can anyone help me understand what I have here? The word “SeroNeg” makes me feel like a fraud. Can someone explain in a better way to me? I don’t exactly know what it’s supposed to mean as I read about it on the Internet. Amy help is appreciated.

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  • By ktinflorida

    Sero negative RA means you have RA. It means you have RA just like everybody else that has sero-positive RA. It just means the antibodies the blood test is designed to look for aren’t there, but you can have real, full blown, serious, painful, just as bad RA without those particular antibodies being present in your blood.

    Sero-negative RA do NOT mean ‘just a touch of’ RA. It does NOT mean ‘almost’ RA. It does NOT mean you don’t really hurt so you should suck it up and suffer in silence. It does NOT mean you don’t need treatment. Some doctors will treat you like that. I dealt with it for years because what I finally figured out was my first Rheumatologist didn’t believe in making a sero-negative RA diagnosis, so he wouldn’t treat it. The RA raged in my body during this time. It damaged my lungs.

    A significant percentage of patients are sero-negative and stay sero-negative. This does NOT make you a fraud. It makes you a hurting, frustrated person. Fighting a sero-negative autoimmune disease is like shadow boxing. You throw a bunch of punches and all you do is wear yourself out. Then someone comes in and turns on a light and there is progress. You need to find the right doctor who will turn on that light.

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