Forums


Treatment

Side effects while on Actemra

  • By kiki

    I’m currently taking Actemra shots once a week. I’ve already been on Methotrexate, Humira, Enbrel, and Xeljanz. I’ve been on the Actemra since June. In the past few weeks I have developed red bumps on both legs, arms, and red blotches on my forehead. My left earlobe is swollen and red. Some of the red bumps look almost like pimples, with a whitehead. Has anyone else had these side effects. Also, I’ve been told my other two choices are Orencia or Remicade. Have those drugs helped? I know I need to call my Rheumatologist, but want to be informed before I do so. Thank you.

    Reply Created with Sketch. reply
  • By Erin Rush Moderator

    Hi kiki! I am sorry you are experiencing these side effects with Actemra. In addition to any community feedback you may receive, I wanted to share some information on possible side effects associated with Actemra — https://rheumatoidarthritis.net/treatment/actemra-side-effects-and-safety-review/. While rashes are a potential side effect, I think it would be a good idea to contact your rheumatologist, as you mentioned. Thanks for reaching out and I hope you get some relief from the bumps very soon! Best, Erin, RheumatoidArthritis.net Team Member.

    Reply Created with Sketch. reply
  • By Richard Faust Moderator

    Hi Kiki,

    In addition to the excellent information from Erin, since you mentioned Orencia and Remicade I thoght you might be interested in these articles:

    Orencia: https://rheumatoidarthritis.net/treatment/orencia-reviews-how-well-does-it-work/

    Remicade: https://rheumatoidarthritis.net/treatment/remicade-reviews-how-well-does-it-work/

    Please keep us posted on how you are doing. Best, Richard (RheumatoidArthritis.net Team)

    Reply Created with Sketch. reply
  • By arizonaspoonie

    Hello my name is Lori and I’ve been on methotrexate humira and xeljanz which stopped working. Waiting for pre auth on actemra. I’ll be giving self injections every other week instead of 4 hour office infusion. Can anyone share with me if this has helped I’m diagnosed over 5 years ago and I will be 55 soon. Thank you

    Reply Created with Sketch. reply