Forums


Exercise & Activity

Workout difficulties

  • By Broken73

    I used to workout a lot before I was dx with RA. Since the time I was dx several years ago, I have gained 80lbs. RA hit me really hard and we have had a really hard time finding a drug to control it. A couple times over the last couple years I have had rare times where I felt good and have worked out, I would feel weird, Like there was a electrical current running trough my body, and I couldn’t work out with any kind of intensity. When I would work out with my friends that knew e pre RA I would push myself harder then I would then I would if I was working out solo, and it would seem I would end up in a flare. Anyway, recently I was started on a new med and hope to lose some weight , I started some easy workouts and those electrical currents are back. To make it worse when I went to see my former trainer and to tell him I need to lose some weight and we were talking about workouts, he was telling me to hit it hard, and I said I don’t know if I can ever hit it as hard as I did back before RA, and he rolled his eyes. I’m sure it sounded like a excuse, but I don’t think he understands, I don’t want excuses, I want to give it everything I have, but don’t don’t know how or what is happening to me. I have been to my pcp, but she wants to blame everything on RA, my rheumatologist has done some blood work as it pertains to RA.

    Reply Created with Sketch. reply
  • By Lauren Tucker Keymaster

    Thanks for sharing Broken 73. We are sorry to hear that you are having some workout difficulties. Sounds like you have a great attitude and really want to get back into working out.
    While of course taking it slow is the most beneficial, you know your body the best, so you do whatever you feel is best.
    I hope others may chime in here to offer you some support too. Please know uou are not alone in your RA so please feel free to reach out to us anytime .

    Come back and let us know how you are doing.
    Best,
    Lauren (RheumatoidArthritis.net team Member)

    Reply Created with Sketch. reply
  • By sharoncookie57

    Hi My GP told me to try working out and for balance. In a month I have had 4 flares that made me unable to do much of anything. Walking across the room was so hard. I like most of the balance one’s and it has helped. One girl will understand and go slow. The other will have me do 30 on each one. I wish there was more understanding on RA. I am about to drop out as it sometimes is even hard to get there.

    Reply Created with Sketch. reply
  • By Erin Rush Moderator

    I am sorry you had to drop out, sharoncookie57! But, if it’s what is best for your pain, then I think you made the right decision. I am sorry some of the PT staff we not more educated on RA. Thank you for sharing and I hope your back starts feeling better very soon! Best, Erin, RheumatoidArthritis.net Team Member.

    Reply Created with Sketch. reply
  • By jenniecorey

    A lot of people don’t understand how we feel. I keep getting told by a friend that the pain is all in my head and to keep pushing myself and work out. I haven’t told my work out crew that i have RA because I don’t want them to think I want sympathy. I also don’t mention any pain that I feel because my coach told me that he had cancer and worked his way back to walking. I don’t really know how to feel. I push myself anyway and some days come home and take a nap. I’m down to 1mg of prednisone now and some days my body just throbs or my feet feel like they are burning. I now just try to modify when i can. If things get too bad, I will just start working out alone at home to exercises that work for me.

    Reply Created with Sketch. reply
  • By ktinflorida

    Hi Jennie. Don’t let the cancer coach guilt you in to doing more than you can handle. We hear cancer and think that if they can persevere then we can too. It isn’t the same. I’m not down-playing cancer, but RA is a big deal too. Everyone responds differently to illness.
    You said you are down to 1mg of prednisone. I hope you are on something else besides that. Prednisone is usually a short term solution. What are you on to stop the progression of the disease?
    Hang in there and have the strength to do what is right for you.
    KT

    Reply Created with Sketch. reply
  • By jenniecorey

    @ktinflorida Thanks for making me feel better. I know they are 2 different things but figured if he could push thru then i should also. Some days i try and others days I am just hurting too much. I just took 2 days off from working out and can tell a big difference. My body isn’t hurting as much thru out the day. I also take methotrexate – 6 pills once a week.

    Reply Created with Sketch. reply
  • By Achyinseattle

    I too get those “electric current” like feelings in my legs at night after exercising. I just started deep water exercise 2 weeks ago and I love it, but afterwards I am guaranteed not to sleep except for in fits and starts between waking numerous times because of pain throughout my body and those weird current feelings. Especially my hips and my wrists.
    I also have a non-RA (I think) knee pain, possibly an LCL problem and it hurts soooo bad after class. but I have to wait until Jan 1st and new health coverage to be seen unless I want to pay for it all myself.
    I feel depressed that I love this exercise and I only experience pain occasionally during the actual class but so much afterwards for the next 2 days that I wonder if it is worth it, and whether I am harming my knee worse or harming my wrists from the foam “weights” we hold under water.
    I get the muscle pain, my thighs and my ribs/arms are sore from lack of use after class, and I know I will get stronger, but do I fight through the other pain? Do I slow down and just do an abbreviated workout? I don’t want the instructor or other members thinking I am a wuss, but I really don’t want to explain RA to them. Everybody else in the class seems to do it all so easily 🙁

    Reply Created with Sketch. reply
  • By howardhill

    I work a roofing and gutter business which I get a work out everyday.Have had R.A for at least 14 years.Found a supplement that controls mine back then.I try to let everyone know that I come in contact with about what works for me. M.S.M. 1000 mg capsules I take only 2 per day, took 6 for at least two weeks, then was able to reduce to 2 capsules, have blood work done, have not had to take any other products, hope this helps ,I don’t inflame, no joint distention

    Reply Created with Sketch. reply
  • By trebleinthekchn

    Prior to my rheumatoid arthritis diagnosis, I was always a long distance runner. I’ve completed ten road races, and four of them were half marathon distance. Just thinking of that makes me feel so tired, but I honestly have no idea how I was physically able to. Now, I have semi retired my running days as the pressure on my joints is just too much to handle. I know it’s a good idea to keep my joints fluid, but most of the time I choose not to exercise to save what is left of my energy and put that towards extra relaxation time.

    Reply Created with Sketch. reply
  • By jessie

    I have read all of your comments and you all seem to be doing really well. I have tried working out, but always end up with a flare up that puts me back 2 weeks. My Dr tells me to walk 20 mins a day but I can’t . I have tried and it kills me. When I come home from a full days work(i work full time) I am absolutely exhausted. Does anyone else feel the same ??

    Reply Created with Sketch. reply
  • By Broken73

    When I try to work out , I end up in a flare too. I try small amounts of exercise at a time. Or do my exercise first thing in the a.m. before I get tired. I don’t push myself hard thought or ill end up broken.

    Reply Created with Sketch. reply
  • By ktinflorida

    I couldn’t do it either. Work was all I could handle. Some times your main focus has to be just to keep your job. If you flare that easily, maybe your meds need to be tweaked. Does your doctor know? Does he seem to care?

    Reply Created with Sketch. reply
  • By ColdOne

    I am starting to think working out and losing weight need to be considered two separate topics, and this is coming from someone who lost almost 30 lbs working out and controlling my calories. However, the amount of time I needed to work out and the intensity level I needed to maintain to make it work, would not be possible for me now, and calorie control alone has not worked for me.

    What I am coming to understand is that working out while controlling calories is a method of losing weight, but not the only or most reliable method–and also one that will not fit into everyone’s life.

    Exercise and physical activity are very important, don’t get me wrong, but there are ways to lose weight that do not require it. They usually involve minimizing or changing carbohydrates, which is all I will say so that no one thinks I am promoting anything. I am currently trying such a plan to lose an additional 20 lbs and can let you know how it goes. My only real evidence that it will work is that my wife lost 85lbs. (!!!) on a plan that required that you eat carbohydrates in a different way than is typical for the American diet.

    Reply Created with Sketch. reply