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I also hate it when people pity me, and if I don’t talk about my constant cruel companion, then others are much less likely to pity me
Like you, I do not remember anything different, and if I awoke one day without constant, severe pain, I’d know I had died in my sleep.
It is what it is, and I’m constantly telling people (those who don’t know…
I so get your thoughts on pain, your way has also been my way for the 50 plus years I have had JRA. I also feel that if I give it too much attention, it might start to define me, and THAT I never want to happen !!!!
Kelly I am so excited to see your stories
You and I could almost be twins, at least “soul twins” … I too was diagnosed at age 2 years old, but I am a bit older than you, I was diagnosed in 1964. The other difference is that I grew up on the West Coast close to Seattle the first 13 years of my life….
But I find myself laughing at some of…
Bless you Becca. Going with the flow is easier but we still have to be aware & fight when we can…avocate for ourselves & speak up!
No. The earlier the diagnosis & treatment, the less joint damage & suffering so, the key is to get the diagnosis EARLY as possible.
Hello. Thank you for sharing your story. I have been recently diagnosed with Ra after 30 years of terrible pain & joint damage. I wish I could have been diagnosed early to avoid all the damage which once done is permanent.
It is best to start treatment early.
Do you have a picture of your hook tool? Interested in getting one or making one
I struggle the same and I wear my RA t-shirts to give myself a chuckle also. Humor keeps me from crying!
When I was first diagnosed with RA, the insurance covered all my medications and all my doctors and testing and everything. Since Obamacare came in, I pay all my doctor bills and all the testing and everything. I pay half of all my medications. Obamacare did NOT help me!!!! And it’s paying less and less. And I am not the only person I know who h…
I also have T-Rex arms. My right is contacted to around 90° and left is not much better. My doctor wants me to talk to an orthopedic surgeon about a tendon release but they’ve been this way 30 years and not sure it would help. I wanted to ask what the hook you spoke of was and where you got it. It sounds wonderful. I have a grabber and use a…
Great article Kelly, and another one I relate to as well. I have one arm about four inches shorter that the other, so I’m half t-rex! Luckily I have my left arm that reaches things better than my t-rex arm but I’m grateful for both 🙂
Humira doesn’t fix what’s already broken though. There are 2 severe targets for the pain fairy to attack at will for me. It took two years and leaving my trusted rheumatologist to come to humira. It’s too late for damage control but as I understand it all, Humira will slow down or stop progression. Nothing I take will repair physical, emotional…
too funny!…along with the other 100 (non) cures you hear from everyone!
With most likely “many” causes of RA, therefore, many different outcomes…we all strive to find “remission”…it is not a cure but it
means the RA/ disease is under control.
That is good “not talking about pain” works for you but for many of us, we need to vent to someone & talk about the “pain” periodically or we would not be able to “cope” so, whatever works for the individual, we all still have “choices”!