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MiniMajik1962 commented on the post, Not Talking About the Pain 2 hours, 19 minutes ago

I also hate it when people pity me, and if I don’t talk about my constant cruel companion, then others are much less likely to pity me
Like you, I do not remember anything different, and if I awoke one day without constant, severe pain, I’d know I had died in my sleep.
It is what it is, and I’m constantly telling people (those who don’t know…

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MiniMajik1962 commented on the post, A Name Change That Doesn’t Help 2 hours, 39 minutes ago

Kelly I am so excited to see your stories
You and I could almost be twins, at least “soul twins” … I too was diagnosed at age 2 years old, but I am a bit older than you, I was diagnosed in 1964. The other difference is that I grew up on the West Coast close to Seattle the first 13 years of my life….
But I find myself laughing at some of…

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Indigo2 commented a story 3 hours, 14 minutes ago

Hello. Thank you for sharing your story. I have been recently diagnosed with Ra after 30 years of terrible pain & joint damage. I wish I could have been diagnosed early to avoid all the damage which once done is permanent.
It is best to start treatment early.

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DiKay commented on the post, What Happens if Obamacare is Struck Down: Part 1 4 hours, 56 minutes ago

When I was first diagnosed with RA, the insurance covered all my medications and all my doctors and testing and everything. Since Obamacare came in, I pay all my doctor bills and all the testing and everything. I pay half of all my medications. Obamacare did NOT help me!!!! And it’s paying less and less. And I am not the only person I know who h…

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Bozwriter commented on the post, Coping with T-Rex Arms 5 hours, 5 minutes ago

I also have T-Rex arms. My right is contacted to around 90° and left is not much better. My doctor wants me to talk to an orthopedic surgeon about a tendon release but they’ve been this way 30 years and not sure it would help. I wanted to ask what the hook you spoke of was and where you got it. It sounds wonderful. I have a grabber and use a…

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kat-elton commented on the post, Coping with T-Rex Arms 5 hours, 20 minutes ago

Great article Kelly, and another one I relate to as well. I have one arm about four inches shorter that the other, so I’m half t-rex! Luckily I have my left arm that reaches things better than my t-rex arm but I’m grateful for both 🙂

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Dbarku2 commented on the post, Transitioning from Diagnosis to Severe RA 6 hours, 13 minutes ago

Humira doesn’t fix what’s already broken though. There are 2 severe targets for the pain fairy to attack at will for me. It took two years and leaving my trusted rheumatologist to come to humira. It’s too late for damage control but as I understand it all, Humira will slow down or stop progression. Nothing I take will repair physical, emotional…

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Indigo2 commented on the post, Not Cured Yet 6 hours, 44 minutes ago

With most likely “many” causes of RA, therefore, many different outcomes…we all strive to find “remission”…it is not a cure but it
means the RA/ disease is under control.

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Indigo2 commented on the post, Not Talking About the Pain 6 hours, 47 minutes ago

That is good “not talking about pain” works for you but for many of us, we need to vent to someone & talk about the “pain” periodically or we would not be able to “cope” so, whatever works for the individual, we all still have “choices”!