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I find myself walking into rooms to get or do something. Most the times I end up spinning around in circles. Scanning up ad down trying to remember why I went there. I can’t control it. I just laugh it off. If my boyfriend asks what I’m doing.
So I hold my arms out and say just spinning to see how dizzy I get. Lol
Cancer is a word, not a sentence.
Get treatment, fight a good fight, enjoy the good times.
I require more and less sleep than when I worked. I take a nap most days but sleep less at any one time 3 to 4 hours maximum. When I worked I was exhausted 24×7 so I understand. When I stopped working and let my body adjust to sleeping and being awake in a less regimented way I gained some quality time, but I sleep more and in odd ways. (It…
My ankles and feet really feel terrible. I have neuromas, swollen ankles, neuropathy, and completely fallen arches due to RA for last 21 years.
I’m only 30 with RA and Sjogrens. My fevers started 3 months before diagnosis and have went from every day to only 2-3 times a week with Plaquenil. Rheumatologist said that fevers are common when people aren’t in remission and have high and consistent inflammation markers. It’s the response of your body and immune system working overtime to try…
I was getting fevers daily. Usually about 1/2 way through my work day. It was the first sign something was really wrong, then horrible joint pain in my hands, feet, knees and jaw. Sure enough RA and Sjogrens. I’m on Plaquenil now for about a month and a half and I’m down to 2-3 fevers a week instead of 7. But it feels like you’ve been drugged when…
Daniel, I even called the Abbot base where it’s made in Chicago. They said the discontinued the drug in 2014. There are others. My RA doctor prescribed 5mg of percocet/no filler. That might have helped me, my pharmacy said the Insurance co. said no..I have a sales rep. with my insurance co. & he says we’ll appeal it. Anyway after being with my RA…
Dear Daniel, Thanks for your reply. I have been using “hydrocodone/actetaminphen 7.5-750mg. This worked for me for a long time. I have RA. I tried Humira, & Enbrel, doesn’t work on pain…In April,2014 the gov. at the time stopped all pain meds for ppl on medicaid & medicare and change it to a total useless drug. First they called it “norco”,…
I wad diagnosed in June of 18 I put on hyrdo first my arthtis Dr put me on medthrax I am also taking folic acid I am a little nervous
Thanks so much for your words of encouragement and for sharing your experience and perspective. It is very helpful to hear that you have been down this road and are glad for choosing that path! I really appreciate you sharing this.
All the best,
I live near Washington, DC – not quite coastal, not quite the mountains, but we have the “benefit” of both kinds of weather (PLUS the torus of hot air on Capitol Hill….). While hot humid summers and cold wet winters are sometimes an issue, I find the absolute worst time is hurricane season – when air pressure fluctuates dramatically.
Yes, it is scary and painful when this happens. I don’t think I will never fully accept it, as it is jarring and frustrating and leaves me feeling stupid and/or vulnerable. However, reading all comments from people who share this experience is helpful to know that we are not alone in facing this challenge. Thanks so much for…
Thanks for sharing, Rick! I have a plan for write more of the snapshots of a time of day, and the mornings are definitely one of them! Yes, here’s to sweats and the comforts of home. Wishing you all the best, Tamara