Hi, I joined this forum as I’m very frustrated with my current condition. I have had RA now for the last 20 years, was comfortably treated on sulfasalazine but started an allergic reaction and got Lichen Planus. Since then I have I have tried Zeljahns, Remicade infusions, Himira for a year and most recently Orencia. Each of them work for a bit but then I get side effects and when we do MRIs, there is quite a lot of deterioration in my joints. I was on Orencia for the last six months and although my ERP and C-reactive numbers were down when he recently did an MRI of my hand, there was significant deterioration due to Tenosynovitis. I still had a lot of pain walking. My knees hurt now my left shoulder hurts. He took me off a Orencia and is asking me to start at Actemra. This would be my third Biologics and truly feel this is a really strong one and am
Scared to try it . however, I have to do some thing because I am in so much pain and most recently my shoulder is starting to hurt now Advil helps a little bit, but even that isn’t completely taking the pain away I would love to hear anyone’s experience with that Actemra and is it really true there are a lot of deaths on it. Thanks in advance.