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Tingling in Feet

Hi All,

My first time on here. I have had RA for 10 years, tried Methotrexate for several years and could not tolerate it. I am now on Leflunomide and coping well with this medication.

In the last few weeks I have noticed a tingling in my feet, I just thought it was because I was tired. (My feet have the most damage to them) But over the weekend the tingling started to move up my legs, I am exhausted and starting to be a bit more wobbly in my feet.

The GP couldn't see me so called 111, they referred me to a walk in center, who then referred me to A&E. A&E were baffled why I had been sent to them and assumed it was to check for blood clots, thankfully none.

I was advised to have bloods done and go back to my GP they suggesting I am deficient in B12 and folate. Needless to say those blood tests came back normal.

Sorry for being very long winded, my question here is does anyone have anything like this to point me in the right direction. I am seeing a GP today, but on a call with them they seemed baffled on what to do with me.

I have read about neuropathy and RA but I don't fully understand this to know if what I feel would suggest this.

Really grateful for any help or advise.

  1. It’s really hard dealing with your body like that, especially when the symptoms keep changing and nobody seems to be giving you clear answers. I do think it’s good that you’re following up with your GP again, because even if it is something like neuropathy, it’s probably not something you want to just wait out. Sometimes RA itself, inflammation, or even certain medications can cause nerve related symptoms, so even if the bloodwork came back normal, that doesn’t mean what you’re feeling isn’t real. Hopefully your GP can help point you in the right direction, because it definitely sounds like something worth looking into further. I want to leave you with an article that one of our contributors has written about neuropathy and RA. It might be helpful to you: https://rheumatoidarthritis.net/living/fraying-nerves/. And if you're comfortable and open to it, we'd love to hear how your appointment goes today! Best wishes, Latoya (Team Member)

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