Fatigue in Young Adults with Juvenile Idiopathic ArthritisResearchers recently published an interesting new study “Fatigue in young adults with juvenile idiopathic arthritis 18 years after disease onset: data from the prospective Nordic JIA cohort” in Pediatric Rheumatology...Reactions0reactionsComments3 comments
The Benefits of Telehealth as an Option - One Year LaterIn March 2020, the world as we knew it stopped in the United States due to the coronavirus pandemic. As a chronic illness patient (living with rheumatoid arthritis, Crohn’s disease...Reactions0reactionsComments8 comments
How to Slay Energy VampiresDo you have energy vampires in your life? You know, the people who if you spend almost any amount of time with them suck out your will to live? They...Reactions0reactionsComments14 comments
The Most RA-Friendly Bra I've FoundLiving with rheumatoid arthritis (RA) means adjusting... literally everything. Over the years, I’ve found some of the parts of getting dressed that once were easy (clasps, hooks, zippers) have gotten...Reactions0reactionsComments33 comments
Thyroid Ultrasound and RAI wrote previously about how my thyroid is currently in the process of some kind of self-destruction. Maybe a bit dramatic, but isn't that what an autoimmune disease is in...Reactions0reactionsComments15 comments
The Things I Am Grateful For2020 was a year. I think we can all agree on that. It really pushed us to our human limits. My 2020 was also pickled with personal loss, personal triumphs...Reactions0reactionsComments5 comments
My Pathway to RA Combination TherapyAlthough I’ve had rheumatoid arthritis (RA) symptoms for most of my life, I’ve only been treated for it since my official diagnosis five years ago. When I was finally diagnosed...Reactions0reactionsComments0 comments
Contemplating a New NormalAs I watch the COVID-19 vaccination effort grow and see the number of people vaccinated increase as the number of new infections decreases, I’m growing cautiously hopeful. I can begin...Reactions0reactionsComments0 comments
Living in a Rheumatoid Arthritis Friendly House Rheumatoid arthritis (RA) is one disease but it affects all of us a bit differently. This is important because there are no cookie-cutter answers for how to adapt your space...Reactions0reactionsComments5 comments
RA and Agonizing Over DecisionsChoices. Decisions. Paths. When you have a chronic illness like rheumatoid arthritis (RA), it seems like every day is filled with life and death choices and if you don’t choose...Reactions0reactionsComments36 comments
The Great Outdoors and RAIf you live in a climate that has all 4 seasons, May and June become that time of year when we are eager to emerge from our cocoons of winter...Reactions0reactionsComments0 comments
A Battlefield of BonesOne evening recently, I noticed my ankle bones. Moments later, I became aware of the tendons attached to them. Out of curiosity, I Googled (as one does) because I suddenly...Reactions0reactionsComments1 comments
Rheumatoid Arthritis Ode to Dr. SeussRain, rain, go away! Don’t come back another day. You make me ache and hurt so much I want to take you out with a punch! There are puddles everywhere...Reactions0reactionsComments10 comments
Apples and Oranges: Comparisons and RADespite knowing that my own situation with rheumatoid arthritis (RA) is unique and that no one else likely has the same experience, I still find myself falling into the comparison...Reactions0reactionsComments2 comments
I Worry About My Care-Partner, My SpouseBlessed with a supportive spouse, I am fortunate to have someone who is able and willing to help me anytime I need. Rob makes a point to listen to me...Reactions0reactionsComments16 comments
Tips for Packing and Moving with RAOne of the most stressful situations in life is moving. Finding a new place to live, packing up the old place, transporting everything, and unpacking well enough to make it...Reactions0reactionsComments11 comments
The Boogie Monster of Rheumatoid Arthritis: Anger (Part 2)In my last article, I talked about realizing that anger has been part of my life with rheumatoid arthritis and why it took me so long to figure that out...Reactions0reactionsComments23 comments
Charting a Careful New Course Post-PandemicAs signs that the long COVID-19 pandemic is retreating and more people get vaccinated, the health and safety restrictions are being lifted and I am pondering about how to make...Reactions0reactionsComments0 comments
Stiff and Tired: Surviving the Evenings with RAAlthough being treated with Plaquenil has made a huge impact on my quality of life, I realize that evenings are still difficult for me in terms of managing my rheumatoid...Reactions0reactionsComments14 comments
The Prednisone BurstPrednisone is my RA’s life-long friend. I have taken a low dose every day since my diagnosis in 2010. Because of this, I usually have free reign to bounce between...Reactions0reactionsComments7 comments