Brief Update

By casmere

1 min read

I am doing good, hip is good as long as I don't move it the wrong way.

About a week ago I was in the kitchen grooving to the music playing.

Not long before I said time to go dancing until I moved the wrong way, and did a slight pivot on my new hip.

That sure didn't go over very well. Pain, here you come.

I guess that's why they say it takes up to a year for a full recovery.

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Getting used to infusions

On another note, I have now done 13 infusions and it is now into a routine.

I haven't heard from my rheumatologist regarding the new biologic/biosimilar he was arranging for me.

So, I sent an email and finally received mail with a new bloodwork requisition. And an appointment date in August, either in person or video. I kind of understand as my IgG level is taking its time to build up.

Muscle changes

I have noticed over the last while that my muscles are getting weaker and achy.

I went to my GP Dr. and wondered if it was the Ezetrol.

He had me go for bloodwork to see if my muscle count was elevated more and it is.

So, off the Ezetrol for 4 weeks, then bloodwork again. There seem to be small issues that come up that have to be dealt with.

We do learn how our bodies feel and if something goes out of whack, we know it. That's the way it is for me anyway.

That's all for now.

Blessings and Prayers,

Casmere

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Lynn Marie Witt, MSOT Moderator & Contributor
<inline-mention username="casmere" user-id="3145733"/> thank you for your update. Always so very good to hear from you. Saw your post and had to reach and ask how the hip is feeling and how you are? Thanks for being part of our community. Just Keep Swimming...Lynn Marie, "RheumatoidArthritis.net Team Member"
casmere Member
Hi <inline-mention username="Lynn Marie Witt, MSOT" user-id="3244142"/> , you are welcome. My hip is doing good. I have to be careful to not turn it the wrong way, but if I do it is not as bad as it was. I stopped doing the exercises recently and I think that has helped. I am doing. I do get some fibro firing up some during the night but it wheens off after I am up and about. Some fatigue but if it is mild I still get out. If it is heavy then no, don't do much of anything. Yesterday I was feeling good so picked up my friend and we went shopping and going out fir dinner. Then all of a sudden, the fatigue hit me. I had to use my walker so I would be able to sit down as needed. It worked out and we went fir dinner then home by 6:30 was nice a day. Thank you for your interest and nice comments. They mean a lot to me. I hooe you are doing well. 
1. Lynn Marie Witt, MSOT Moderator & Contributor
 <inline-mention username="casmere" user-id="3145733"/> I am so glad that your hip is doing good. Yes, please be careful!!! Although, being a dancer, I understand how difficult it is not to move to the music sometimes lol. I didn't realize you also had fibromyalgia. Me too!!! -wish I didn't. Casmere you know your body and definitely know when you can do things, and then also those times when you need to rest. It's always nice when we can get out with our friends. This past Saturday I got to hang out with one of my dear friends. We could sit for hours and talk about life, talk about nothing, and laugh the entire time. Very therapeutic! Hope you had a great time with your friend, a wonderful meal, and a successful shopping excursion. I honestly enjoy chatting with you and hearing your updates. One of the many reason I am grateful to be part of this community. Stay awesome Casmere! Just Keep Swimming...Lynn Marie, "RheumatoidArthritis.net Team Member"
casmere Member
Thank you <inline-mention username="Lynn Marie Witt, MSOT" user-id="3244142"/> for your kind words and encouragement. I understand about best friends. My best friend rom the closesrbig city, we don't see each other often maybe a couple times a year. But every 2 -3 monthd we get on the phone and we can talk 2'-3hours. She actually called me this morning before heading to work, we were on the phone for 40 minutes. So, i understand where you are coming from. Blessings Casmere
1. Lynn Marie Witt, MSOT Moderator & Contributor
 <inline-mention username="casmere" user-id="3145733"/> I am so glad that you have the type of friend I was talking about. They are much needed in our lives. Stay awesome Casmere! I always enjoy catching up with you. Just Keep Swimming...Lynn Marie, "RheumatoidArthritis.net Team Member