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What do you do when you have all the symptoms but no diagnosis?

Every time I go get tested, something comes up. So random thing that the doctor can lazily excuse as DX. I have so much but it all ties together right? I get a fever every day for months and no one has a clue

  1. Have you had a test called Anti CCP? It is very accurate. However there are some persons who have RA and are Lab negative. For 1 1/2 years I was lab negative when almost every small joint in my hands and feet were so swollen and painful I could barely walk and could barely hold a fork to feed myself. My CPR has never been elevated. However my RA factor is now over 600. AntiCcp was not available when I was diagnosed 30 years ago.

    1. I can’t even imagine 30 years of this. Not all RA docs are created equal. I have positive RA factor but negative autoimmune test

      I’m just tired of fighting for every one else because I make people uncomfortable. Or my embarrassment of having to use a wheelchair at 37- Oh I am livid at scammers

  2. I was the same way. It took 20 yrs. for mine to show up with the old tests . When the new one come out it confirmed. I was blessed to find a great Dr. who knew what was going on.

    1. If only people could have one hour of a flare.

  3. Hi amypollock82. Sorry you are having these diagnostic issues. Unfortunately, as detailed in this article, blood tests don't always tell the entire story: In fact, up to 30% of cases are what is known as seronegative. Are you seeing a rheumatologist? This article details how RA is diagnosed: Hoping you get some answers soon and know you are always welcome here if you have more questions or just need a little support. Best, Richard ( Team)

    1. See, I have so much wrong they blame my 4 month fever on fatty liver disease
      Well why is my liver inflamed
      No answer! I’m a little overweight now but only because I spent 2 years in a chair. I had a stroke as a baby with Central pain Syndrome from my stoke..
      I so much more I can go all day. You know your life is special when doctors tell you “you are the most unlucky person ever” and I was turned away by gyms for liability reasons. They put a pump in but dang the inflammation. I pray they don’t take it out because of my body not liking me.

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