RA pain
I was diagnosed with RA 3 years ago. I am currently seeing a new rheumatologist, as the previous one just doesn't seem like she was interested.
We are trying different medication combinations, but so far it's not helping that much.
My question is, Does the pain go away with the right medication? I am so confused because both rheumatologist gave me different answers.
Hi
. The question on whether RA pain ever goes away is certainly complicated, which I suspect is why you got two different answers even from doctors. The short answer is that it may depend on the case. Each case is different in severity and the ability to find an effective treatment. A person who is diagnosed quickly, finds a treatment before much damage occur, and achieves remission just may discover a pain free existence. If, however, there is existing damage and treatment manages to help control symptoms, but never eliminate the inflammation then some level of pain is likely to remain and have to be managed.
All of this uncertainty probably explains why those with RA even tend to view the concept of remission differently (see this article from Monica for example: https://rheumatoidarthritis.net/living/reevaluating-remission).
I do want to note that all of this uncertainty doesn't mean that a full and happy life are not possible, even without remission. Many search long and hard and finally find that treatment that brings a good level of control. Forms of pain management can also help (see: https://rheumatoidarthritis.net/living/pain-management-specialist). Some, of course, is simply overcoming. I'm tagging my friendhere, who has had a lifetime of experience (diagnosed as a child) and can better comment on these aspects than I ever could (see here for example: https://rheumatoidarthritis.net/living/personal-approach-coping). Hope this information is helpful and that you find that treatment soon. Best, Richard (Team Member) Thank you so much for this info. It was very helpful. I'm going to be positive and know that we will find the right combination that will bring me relieve🙏
Hi
. Oh yes, there is definitely a lot of variation in cases. That said, as you noted, a good rheumatologist can make a huge difference. You may recall that my wife, Kelly Mack (a contributor here), was diagnosed at age two and has used a wheelchair since childhood. About eight years ago she started a new med that brought her inflammation numbers into the normal range for the first time. I know my friend and fellow team member has a similar story. Without rheumatologists who didn't give up this may not have been possible.
I also want to note that sometimes it can be tough to tell the level of severity because if a person finds something that works early enough it can keep damage from occurring and treatments have definitely improved. On more than one occasion we have discussed with Kelly's doctor the hope that kids diagnosed today won't get near the same level of damage. So glad your treatment is keeping things pretty well controlled. Best, Richard (Team Member)thanks Richard. It has been a crazy journey.
I have mentioned this elsewhere, but I think a major turning point for me was the Rituxan infusions. I had 2 back in late December/early January, and by April I was feeling great. Huge difference.
Hi,
! I noticed it’s been a little while since your last post, so I wanted to check in and see how you’re doing. How have things been going? Are you still looking for a medication that provides some relief? -Latoya (Team Member) I noticed it’s been a little while since your last post, so I wanted to check in and see how you’re doing. How have things been going? Are you still looking for a medication that provides some relief? -Latoya (Team Member)
