Conversation of the Week

By Editorial Team

1 min read

Last updated: January 2023

RA Conversation of the Week

We're launching a new initiative designed to connect you with our RA health leaders! Starting in November and ongoing throughout the rest of 2022, each week a different RA health leader will lead a discussion in the forums section of rheumatoidarthritis.net in our "Conversation of the Week."

RA Topics & Schedule

Have a question or comment about your RA experience? Share with our RA health leaders who will be talking about life with RA, strategies they've learned, and insights to help!

Pet Care When In a Flare

Week of Monday, November 14, 2022
Led by health leader Monica Sengupta
Forum: Pet Care When in A Flare

Managing RA When You Have Multiple Chronic Conditions

Week of Monday, November 21, 2022
Led by health leader Leanne Donaldson
Forum: Managing RA When You Have Multiple Chronic Conditions

Managing Fatigue Due to RA: Tips, Questions, & More

Week of Monday, November 28, 2022
Led by health leader Daniel Malito
Forum: Managing Fatigue Due to RA - Tips, Questions, & More

No conversation this week

Week of Monday, December 5, 2022

How to Stay Resilient Mentally and Physically with RA

Week of Monday, December 12, 2022
Led by health leader Lynn Marie Witt
Forum: How to Stay Resilient Mentally and Physically with RA

Experiences with Biosimilars

Week of Monday, December 19, 2022
Led by health leader Rick Phillips
Forum:Experiences with Biosimilars

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RA Awareness Day: Test Your Knowledge

0 comments

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Take Care of You!

24 comments

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The RheumatoidArthritis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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JulieT
I have a question/conundrum. I had a very bad flair hit on a Friday night and had to miss work. By Monday I was barely walking and my hands had developed spontaneous blisters, some the size of pencil erasers. I emailed my rheumatologist and for the first time since my diagnosis I was given a medrol dose pack. Never had steroids yet. I just finished day three and my hands look beautiful in various stages of healing and my body, first time in years, FEELS GREAT!! I know this is a false feeling of wellness. I am scared of knowing this is not going to last. 🥺 Today I will be crawling around chasing my one year old grandson unlike I have been able to do since he was born. I don't want this "wellness" to go away. Julie
1. L rick Phillips Moderator
 <inline-mention username="JulieT" user-id="5837703"/> I think we have to enjoy it while we can. I recall my first dose of Remicade. I danced thru the house singing I am free. Trust me, I am not a singing and dancing sort of guy. I knew it would not last, but I never forgot that first time I felt good in years. I think sometimes we get to feel really good, and feel really good about it. The other stuff will come soon enough.
JulieT
<inline-mention username="L rick Phillips" user-id="3194573"/> , thank you for your kind response and thoughtful advice. I am enjoying my "good days," but I admit I am a little sad and a little scared. Sad knowing the great way I feel is only temporary. Scared knowing I have only but begun this journey. 💙 
1. christine.laaksonen Admin
 <inline-mention username="JulieT" user-id="5837703"/> we're here for you. It can scary, but please know that you aren't alone. Any time starting a new treatment there can be a lot of ups and downs. (Especially with steroids.) Sending you gentle hugs. -- Warmly, Christine (Team Member)
JulieT
<inline-mention username="christine.laaksonen" user-id="3148879"/> Thank you for your kind encouragement. I am down to the last 2 days of my steroid therapy. It did open my eyes to how bad my RA is and I believe I will be less hard on myself when I don't accomplish as much day in and day out with my diagnosis. Everyone here has helped me a lot too! ❤ Sincerely, Julie