AOSD

Hi . Does your rheumatologist think you may have Adult-Onset Still's Disease (AOSD)? We don't hear a whole lot about it. A fellow community member wrote about their experience getting diagnosed with it here: https://rheumatoidarthritis.net/stories/finally-a-name-to-go-with-what. I also want to share with you this page on AOSD, which is a continuing education document for medical professionals: https://www.ncbi.nlm.nih.gov/books/NBK538345/. Are there specific issues that you are struggling with? Best, Richard (Team Member)

Hi, !

In addition to the resources Richard shared with you, I wanted to mention that we have a sister site dedicated to rare diseases and we have a fair amount of articles on AOSD. I wanted to share a couple with you, including this one about the differences between RA, JIA, and AOSD -- https://raredisease.net/clinical/differences-stills-disease-other-arthritis. And here's a link to a compilation of articles (including the one I linked previously) on AOSD -- https://raredisease.net/understanding-adult-onset-stills-disease. I hope you have been able to find resources that have helped you learn more about AOSD and that you are doing well!

Best, Erin, Team Member.