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Rheumatoid Arthritis

It’s been past 12 years since I was diagnosed with rheumatoid arthritis. I’ve been on a lot of injections and infusions. They work for a little while and then start getting side effects. Here recently I’ve been sick for 4 months straight with sinus infections, upper respiratory infections, laryngitis, and much more. Now my doctor has made a suggestion to get the SetPoint device put in my neck. So after much thinking I decided to do the surgery but I have to wait until after the sinus surgery. I have not had much energy to do the things I love. So hoping and praying all goes well. Have any of you heard about the SetPoint device? If so , Have y’all had one put in and how are you doing with it?

  1. Hi . I have definitely heard of and did some research on SetPoint, but can't personally speak on it. You may want to check out these previous Forums on the topic: https://rheumatoidarthritis.net/forums/setpoint-system-just-approved-by-fda and https://rheumatoidarthritis.net/forums/update-on-setpoint-vagus-nerve-stimulation-ra-treatment. Hope this information is helpful and that anyone with experience chimes in. Also, please feel free to keep us posted on how things are going - I'm sure many others are also interested. Best, Richard (Team Member)

  2. Hi, !

    I can't offer any personal experience with SetPoint, but I do hope the links Richard provided are useful for you. I do want to offer my support and healing vibes as you face both sinus surgery and the SetPoint procedure in the future. My husband has been plagued with sinus issues for his entire life and has also had two sinus surgeries, so, I do have a vague idea of what you have been dealing with. I do hope the procedure is a success and brings you some lasting relief! Between dealing with RA and nonstop infections, it's not wonder you are feeling run down and tired.

    Best, Erin, Team Member.

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